Well, as RedFlame said, he giveth and he taketh away. Not that my neuro has done so, however:
On the 13July my neuro said to ME, "MS".
ON August the 20.....something, 25th I think, when I asked, if it's NOT MS, what could it be, he said "Well I ca't think of anything it could be except MS".
But yesterday I saw my GP (normal doc) and the two letter he has from my neuro say, and I quote:
"J has a difficult diagnostic problem here. She has seen many neurologists in Brisbane and there is a somewhat different opinion as to her symptoms being atypical migraines or possibly MS.
She does get migraine, two or three severe headaches a year. She has had, 3 years ago, what her daughter thought might have been a seizure. EEG at the time was normal and CT then MRI scan showed WML and hence MS was raised as a possibliity.
She has been getting worse since november 2009.
She moved from Bris.......blah blah due to heat etc. Her fatigue from the heat was out of proportion to what other people would normally feel. this does raise the possibility of MS. The MRI scan that I reviewed showed extensive WMLs throughout the hemispheres with some juxtacortical lseions. Some of them are quite large and there are some very small lesons in the corpus callosum which certainly to me looked more like MS than small vessel disease.
She currently suffers swaying, lightheadedness, no headache ( ahem, yes I do), anxiety (wonder why?) and tight feelings in her legs. ON examination there is mild weakness in the legs.
the diagnosis is not established yet and I will be investigating further...
blah blah yours...."
AND a second letter:
"the lady with possible MS had VER today which are quite satisfactory. IN the last 4 days she developed ataxia, parathesia in the feet and her legs are weak.
ON examination there is mild weakness in the left leg, the left plantar response is equivocal and vibration seems diminished on the left compared with the right.
it would appear she is having a relapse but she wasn't keen to have pulse therapy at this satge (due to commitments with a child - my words not his)
If this settles and doesn't progess I thought we'd do an MRI scan of the brain and cervical spine to see if there are new lesions.
Blah blah yours etc"
SO
To ME he says, "MS", to the other doc he says "possible".
WTF.
What is it that is stopping definitive diagnosis? and why would he say one thing to me and another to my GP?