Final Tally...to date.

[Heather3418]

The results of my survey for the number of Limbo Landers and those actually diagnosed are:

Limbo Landers: 56+

Diagnosed:  20+

Very interesting!  Thanks for your participation.

Heather

[Wobbly]

Great Survey, very interesting to know this.

I would love to know another survey from this forum, but do not know if it's possible or not.

"When a final Dx is found... "What is the Dx for the Limbo Landers"

why do all these people have so many simular symptoms...and what answers the Dr have found...

But I don't know how we could find all this out...

thanks for you work Heather..

andie

[spunky59]

Great survey!  However, i think you may have picked a pretty tricky diagnosis to do a survey on.  But I give you KUDOS for doing it!  :)  I read just about everything and anything I can get my hands on regarding MS.. And from what I can see - there is now Yes or No answer at all... And I can speak only for my neuro - who is trying to rule out EVERYTHING else prior to diagnosising me with MS, they do there best with what they have.. And YES - some doctors do lay awake at night!  I know and work with over 200 of them!  SOME...... ;)   My doctor has mentioned to me a few times - that once diagnosis with MS - I will have this diagnosis FOREVER.. even if in 2 years - My spinal cord lesions disappears, the O-bands in my CSP leave, and all my symptoms go away - and hello... you had just a horrible virus that mimiced MS.. But guess what - your insurance company, life insurance, and all the other people who would EVER look at your records for anything - now think you have MS... So be patient, and let the doctors do what they do.  There are many things doctors can do to manage your symptoms while they research the diagnosis.  Good luck!  I am just as frustrated as you - but Im doing my best!

[doublevision1]

The results of your survey kind of makes sense, doesn't it?  Nearly 3x as many limbolanders as dx'ed hanging out here.  It shows that perhaps the limbolanders are actively looking for answers perhaps more so than those of us who know for sure we have MS.  However even those of us dx'ed are still looking for answers....how to deal with symptoms....treatment problems (my own particular issue du jour)...etc etc.

Most important about this forum, maybe even more than finding answers, is getting support from people who can relate.  For both the limbolanders and the dx'ed, this is invaluable.

db1

[Jazzyfizzle]

Well, there is cog fog in action for ya --!

'I would lie AWAKE at night worrying'  



J Fiz

[Jazzyfizzle]

Very interesting Heather! If only some doctors would take notice and actually search for what is happening to the Limbo'ers. If I was a doctor, I would lie away at night worrying about my people, wondering if I was missing something, I wonder if they do that? I think not. :(  

I am sending out a little wish to wherever wishes go, for answers for us all.

Jazzy