First Tysabri infusion

[LATW]

Things went well.  The I.V. was started in my hand so I could move my arm.  The last thing I remember was them hanging the bag and hooking it up to the I.V. in my hand and I was out.

I was so tired!  I slept the entire 2 hours while my husband and son watched tv.  I feel fluish but nothing like with the injections.  So all went well and I am happy with the change in M.S. meds!!  so far

LA

[summerluvr]

I thought I posted here?  oh well maybe this is a double post.  I have had a lot of IV's for chemo (not MS) before they put a central line in.  I find the hand is more painful, and over time my hands are now poked too much and the infusions don't go as fast, and is more painful afterward (the vein gets burned or something).  I ask them to use the larger vein just above my wrist.  The worse one for me is the elbow.  I hope you get used to the med and have less flu symptoms each time.  Even going to the hospital and waiting and sitting through the IV is exhausting in and of itself, don't need the med to make you feel worse!  Good luck

[LATW]

Thank JJ,
I was worried about having a bad reaction.  Skipping the flu part would have been great!  I did the same things before the infusion that I have done before my injections.

Fluids and advil.  So far I am doing ok.  It is difficult to tell about the about the tiredness since I sleep a lot of hours as it is.

LA

[supermum_ms]

Wow sorry i missed the news, scarry stuff I think going on or changing meds, its great to hear that you didn't react badly to it, though i'm sure you would of liked to of skipped the flu-ish part. Fingers crossed it all goes well!! :-)

Cheers........JJ

[Sumanadevii]

Thank you, guitar_grrrl.  It answers my question.  I am staying on Rebif unless MS rears her ugly head...and it would have to be a major rear!  lol

[Guitar_grrrl]

I'm in pretty much the exact same condition I was when I started Tysabri.  Maybe just a tad weaker.

My biggest issues - weakness, fatigue, spasticity, spams. All 4 extremities.

The good news: no new flairs (that I know of) in the almost year that I've taken it.

I'll take the minor side effects of this over the interferons any day!

[LATW]

I have had a head ache most of the day today.  I took a good nap.  

But I will say it is nothing compared to the side effects of Avonex and Beta I was having.

LA

[Cosmobirdy]

Sorry you feel yukky today .... I'm glad the infusion itself went well, though.  I have been trying to remember how it was when I first started - I think I had headaches and some fatigue after the infusion for a day or so, but after the first few infusions that went away.  Now I don't really notice anything with the infusion itself - no headaches, but no noticeable energy burst, either.  Hopefully you will feel better tomorrow.... :-)  At least you have the first one behind you now!

Rita  

[surth]

How did the injections make u feel im going for a trail in January ive never used any drugs for MS only the cotozone drip. Should i be scared?

[LATW]

I feel YUCK today.  I was told by some one I know who seems my neuro that she is fluish for about a week before she starts to feel good. That means I should feel good for Christmas!

LA

[Sumanadevii]

Would you mind sharing the condition you were in before starting the infusions and the difference today?

[Guitar_grrrl]

Hi, LA,

Best of luck.  I often feel tired after my infusion.  For me, it takes almost a week to kick in, and then I feel pretty energetic until about a week before my next infusion.

Meg, these infusions happen every 28 days.

I get # 11 tomorrow.

[meg321]

and does that happen for two hrs every week?  Keep us posted..

thanks, meg

[Sumanadevii]

Please continue to keep us updated....especially with any reactions.  Of course, what I am really hoping to hear is that it's working and calming everything down!!

[LATW]

Thanks Lulu!  And that the nasty PML issue stays away

[Lulu54]

First one down.... I think that has to be the hardest with not knowing how you will react.  Here's hoping the ty does the trick for you.  

L