Hi there one and all,
I had a follow up appt today with the neurologist, It was very shocking and i'm about to pull a lot of fun from a very very upsetting time, one i will not now or ever bother repeating, fun i will make because this usually happy little lady is crying buckets and i'm not putting myself through it ever again, i'm doing it on my own, just like i always have.
I arrived at my appt proudly walking as close to normal only about every 3rd step my knees being rubbery and not locking, i was really pleased with my self, id come a long way and it felt really good to be walking so well. I had no expectations of a dx but i was gob smacked with what he had to say, i hadn't even got my bum on the chair when he said "you dont have MS, nothing lit up, your fine!". Shocked, I handed him my symptom tracker and my time line, which he looked at for all of 5 seconds, humphed and promptly ignored it, saying "well you dont have MS". STUPID ME blurted out of my goldfish gulping mouth, i dont understand are you saying nothing showed up on the MRI's? He looked at me oddly and brought up my brain MRI, he's skipping through them and i'm seeing dull white spotty areas but he's not pointing them out, he stops at a brighter one near the centre and says "you only have a few irrelevant bleeds" and there is a bit of decimation of the white matter in your frontal lobes but you havent had any signigicant brain shrinkage, oh you do have a couple of areas here and here but they are nothing, this is a good brain, you havent had a stroke and you dont have MS!"
I'm still doing my goldfish impersonations, trying to get my wee little 'good brain' to catch up with what he was saying and before i could ask what all the other white bits were he was ending the appt. and getting up off his chair. I blurted before he'd made his escape, I cant believe nothing was even found on my spine MRI with the way i'm walking! (remember i'm still shocked and a little dumfounded he was leaving in about 3 minutes of my appt and id waited 7 weeks for this), with a sigh worthy of an oscar he went back to his computer and brought up my spine and said "you do have a large area of decimation just here (pointing to what looked like a 3 cm squashed white bit) but its not in the spinal fluid so its nothing." "You havent had a stroke, i'm 98% sure you dont have MS but i want to help you so i think you should see a pschyatrist.
He was none too pleased that i didn't lean over to get my head patted and my tummy rubbed, steam must of been coming out of my ears, sweat little puppy dog had some bite and he didn't take well to me not being happy and hormonally snappy. I asked him to explain why which put him on the defensive (i know wrong wrong wrong but i had pmt theres no controlling it when i'm facing an idiot), i wanted him to explain how specific cognitive deficits could be attributed to a psychiatric condition, just to let you know its not possible to select them like your picking apples. He was unable to explain what else could cause my totallity of symptoms, he was quite comfortable thinking i could create all this with my 'good' but phychologically ill brain. Funny this is the first time i've actually come out about it, and i only did that because i was imobile and i couldnt hide it any more, which i now regret bothering to do. He couldnt explain what psyciatric conditions caused a person to be unable to walk with out spasms and spasticity and he was not pleased that i was asking the questions, sorry thats what i normally do. I wanted to say its not you,(smile sweatly) its me,(smile sweatly) dont take it personally i'm different, i dont think your god,(smile sweatly) your in a hurry and you've already made up your mind that i'm a hysterical person with emotional issues about their health,(smile sweatly) you've got your work cut out to ever convince me that a psychiatric illness can cause my symptoms because i already know they cant, so if you'd like me to recommend a psychiatrist to help you work your self out id be happy to help you (smile sweatly).
Now dont misunderstand me, i was trying to be nice but so far this 'profesional' had made mistakes in a very short time. (1) mentioned nothing lighting up when i had no contrast, (2) no change since my other MRI and i've never had any others, (3) ignored quite a few 'white' bits (4) said i have been seeing other people when he's the only person i have ever seen (5) mentioned the gp (that likes to say its stress every time her blood tests are fine) by her first name only, which makes me think not happy thoughts (6) type cast me (7) assumed i was an ignoramous (8) assumed i wasnt happy because he wouldn't give me the dx i wanted, twit twit who wants MS (9) he acknowledged there were neurological symptoms but decided to ignore it and go with psyciatric illness (10) wanted me to have an EEG and LP to get me to leave.(11) in exasperation stated i specialise in epilepsy and i know you dont have that, like i was shopping for a dx or a new sweater.
So people i am done, not doing this anymore, the next time i cant walk after ive had the flu and the words are lost or stuttering, i'm taking my self off to the local psychiatrist to get myself admitted, no i'll just wait until i'm dead (joke!!!) to get them to find the evidence on the autopsey, i've been dealing with this for a long time and the only time i actually tell someone and bugger it to heck and back but no one believes me (not you guys) i'm talking the people who are suppose to help. I didnt want this, i didn't even want anyone to know. I'm tired of my family situation being used as an excuse for everything that happens to me, my sons psychologist would be suprised that i've suddenly acquired a psychiatric illness, i think she'd have a laugh because its just rediculas that the psychologists and psychiatrists i know through my kids think im fine and the medical drs think i'm not.
Cheers and good luck to everyone, thanks and many huggs!!!!!!!!!!!!!!!!!
JJ