Follow up appt with neuro

[wiggles94]

I had my follow up appt to review MRI and treatment.  I saw a new nurse practitioner - and she agrees with my second opinion neuro - what they see on my MRI is not classic MS lesions - only one in the cerebellum - all other 12 all very small -  And no new lesions.  And my exam - as usual was very good - just brisk reflexes.

I also told her I don't think I've ever had an exacerbation as I have heard others describe.  I just have these wierd sx that come and go all the time.

So for now I am going off Rebif - but I can go back at any time if I choose.  She is keeping my dx of CIS and I will meet with her again in 6 months.  I am going off the Rebif because I think the shots may be making me more tired and depressed.  And until I see more proof that this is MS - I will sit tight.  She is supposed to the the best for MS in my area - and also feels as the other neuro did - if  I have an exacerbation - they can treat it with steroids to help it resolve quickly and I will get back on DMDs.  She is wondering if I have small vessel disease - but I really am at low risk for that from what I read.

I'll keep you posted if anything new comes up - I think we can all learn from each other - but for now I'm going to take a break from MS -CIS - and docs. (Hopefully).  I want to thank everyone for all their support and wish everyone the best.
Carol

[wiggles94]

Thanks so much for all the love ladies!  

Sarah  - your posts are always so positive and supportive!
Pam - best of luck in your upcoming operations.  I know you have a lot going on and wish you only the best.
Shell - thanks for the shoulder the other day.  I needed it - all of this is such a process.  
I'll keep you posted on how things go for me.  Keeping my fingers and toes crossed!

Healthy vibes going out to all!
Carol

[sllowe]

Hi Carol,

Well, you sound somewhat ok w/all this. Though we discussed a little already - I'm a pain where CIS is concerned. If this is MS and you treat early you definitely increase your odds of slowing progression.

You taking a break from us? That's ok....but you know your not allowed to leave, MOB rules and all, lol

I sure do hope you get your spirits back :) I know you need the break. Stay in touch!
-Shell

[drsdonthelp]

Hi Carol,

I am glad that you are not having alot of major symptoms and decided to take a break. I don't blame you. It feels good to somethimes just sit back and live life in "safe mode".

Good luck to you and Enjoy your break, you deserve it!!

Hugs,
Pam

[Sparkysarah]

Hi Carol

Well it sounds as if your neuro is supportive and caring and I think your post is positive.  Just remember we are all here if you decide you want to come back and meanwhile I hope that you can just get on with your life and moev forwards.

Best wishes

Sarah