Gilenya Users: Past and Present

[sllowe]

I've started posts in the past for our DMD users so we can easily use the search feature and bump them up and add on through the years.

Please add your name here:
name:
dx:
Gilenya (date)

[hreynolds29]

Hello all! I was just recently diagnosed with relapse remitting MS on Aug 14th 2013, mild right now, few lesions on my brain and one on my lower spinal cord. My doc put me on the a 5 day IV infusion of steroids to get rid of all the numbness I have had for the last 2 months, finished that bad boy yup yesterday WHOO HOO! Now I go back to him on the 24th to talk about Gilenya. He was a big fan of this medicine when we talked briefly about the medication options out there. He told me once he puts his patients on this oral pill he ends up having to call them back in to see him, cause they feel so good HAH!!

After reading up on all the medication that is offered, this one seems to best fit me and I wanted to get everyone's opinion on it?! How long have you taken it, what are some of the side effects you have experienced on it since taken it?! What can you do on the meds?! What can you not do?! ETC....

[ERVG18]

I was just recently diagnosed and am hopefully starting on Gilenya within the next few weeks...I'm also scheduled to have robotic outpatient surgery to remove some uterine fibroids...right now it's scheduled to start Gilenya and then two days later have the surgery.  Any thoughts on this?? Might it be better to have the surgery and start Gilenya afterwards? Anyone with a similar experience? Thanks.

[sllowe]

Excellent news! I'm so glad this was bumped. I think we are behind on all our DMD user lists!
-shell

[debgen]

I have been on Gilenya for 3 months now. I am going to have my checkups next week so I don't have any real data yet.

I can tell you that I feel so much better since starting the Gilenya. I have been healthy, no colds or illnesses at all. Although I still have difficulty walking, I really am doing better. I am getting around outside using my cane instead of a walker because my balance and strength have really improved! indoors, I am walking independently :)

So far, so good!!!

[Mummy76]

Bump

[Needhelp16]

**bump**