Just Confused

[Mooshie27]

When I was 20, I had an appisode of blindness. The blindness last for about 20 minutes but I with weak and disoriented for about a day or two. For the past couple of years, i've had bowel issues. I take nexium every day and immodium for irritable bowel just about every day. I get dizzy and fatigue when I take a warm to hot shower. I take showers with the bathroom door open now just to let the excess heat out. Before I had remeded this, I would get out of the shower, and before I could get dressed, I had to lay down for a half hour just to recoporate. I had an eye exam about a year ago and my vision wasn't less than 20/60 because it wasn't mandatory that I were glasses for driving. I just had another eye exam about a month ago because my vision is progressively getting worse, I thought quicker than normal. Now I have to wear glasses because I am below 20/60 in both eyes. In January, I went about 80% blind in both eyes. This episode last for about half hour again but still dizzy with a slight headaches for about a day. But since then, I have developed pins and needles in both hands and fingers, and feet and back. vertigo, pain in my eyes, the top and back of my head. Every now and then when I am laying down, some part of me will jerk. And still dealing with bowel dsyfunction every day. I had an MRI brain w/wo contrast. I t showed multiple bilateral lesion. I have confirmed optic neuritis by a neurologist. No lesions on the MRI cervical w/wo contrast. I am still waiting on the results of my VEP/SEP. The tech who performed my VEP said I should go to an MS specialist and why was'nt I on any meds. I told her I was just diagnosed a week ago. I am really concerned about what that VEP showed. My neurologist thinks I have MS but the thing is, she is going on maternity leave. My next appointment isn't until August. Do these symptoms and MRI sound like MS to you? And since I have been getting progressive worse since January, should be concerned about not seeing a doctor until August? Should I look for another Neurologist? I am really stressed out.

[Nancy T]

Visual disturbances, including blindness, lasting about 20 minutes--with or without headache, dizziness, tingling, and other symptoms--sounds classic for a migraine attack.

However, you obviously have much more going on than that. I agree that they shouldn't make you wait until August to see the neurologist! Doesn't she have someone else in her practice that can see you? If not, they should refer you elsewhere. Good luck with the investigations and diagnosis, and keep us posted.

Nancy

[Mooshie27]

Lu,
Thank you soo much. I have never done anything like this before. I wasn't sure how it worked. I feel a lot better now. I'll let you know about that VEP/SEP test.
Sharon

[Lulu54]

Mooshie,
Often times things get busy around here and new posts slip quickly toward the bottom of the page or even move on to page 2 where they are really invisible.  If that happens to any of your questions, just bump it back up to the top - simple write a new comment or *bump* in the comment section and that will move it up again.

We're all volunteers here - its quite the community of MS patients and caregivers and everyone loves to help out with answers.  Be patient and I'm sure others will be through to help too.

my best,
Lu

[Mooshie27]

Thanks for the encouragement and for responding. I was starting to worry that no one would. I will keep in touch.

[Lulu54]

Hi Mooshie and welcome to the MS forum at MedHelp.  It sounds like you have had quite the crash course introduction to this disease.  IF you have MS, and there are lots of mimics out there, I would not want to wait until August to see the doctor.  Call her office and ask for a referral to a different neuro. You have already been at this for a while and should not have to wait longer.

Remember, it is not life or death if you wait to begin treatment,  BUT the sooner you start on a DMD the better your odds become that you will successfully corner this MiSerable disease into the  background.

Be well and stay in touch,
Lulu