Have Issues

[kimmiesue]

Is it possible for someone to have ms but the tests all come back negative...it seems i have alot of symptoms that might be ms but my doctor told me it is fibromaygia and when i talk to fibro patients who have it say sme of the symptoms i have are NOT fibro related ...like throat spasms in neck i ask the doctor if it was because i have acid reflex at times he said it wasnt related to that ..i was resently diagnosis with fibro..have been taking lyrica but that doesnt seem to get rid of all the pain so i still take vicodin ..i also have that wet feeling running down my leg and back and buttocks but i was told it was fibro related either... i dont have stiffness which i told my doctor i told him i have alot of cramping in my limbs he keeps telling me cramping and stiffness is the same and i didnt know that fibro made your fingers and toes ( turning different ways) RA doctor told me i dont have RA cause he saw my fingers and toes ...and the mri of the spine came back normal should i take a spinal tap to confirm that if any1 has any suggestions i would be greatly appreciated for their help....and if any1 gets a lot of migranes (im guessing that is what i have) a suggestion to get rid of them i had one for 5 days now ...Thx Kim

[ShockedToday]

Kim,

When I first started down the road of figuring out what is wrong with me, I did a lot of research and felt sure that I had either fibro or ms.  I was eventually given an ms dx but had that taken away due to a negative LP.  Now I'm officially dx with an 'unknown' demyelinating disease.  

Anyway, the reason I figured I had either fibro or ms were obviously the symptoms matching what I was going through.  More matched ms though.  I have around 20 lesions and have yet to find any research that showed people with fibro having so many lesions.  If anyone has any  links to such research, I would love to read them.

I also have horrible muscle aches & stiffness in my right arm.  This has been going on since my last flare the end of December.  In no way is it cramping.  It matches what one reads for spasticity.  So I think your doctor is confused about that.

Anyway, I'm not much help, but I wanted you to know that you are not alone.  I pray that you get some answers soon.

[doni54]

Hi Kim,

I'm going to make a statement and it is strictly my opinion so don't take it as fact.  I do believe that sometimes patients are given a dx of fibro when in fact it is MS.  There are also some members here who have fibro and MS.  I'm not saying you have MS, but I have a really great friend, Samantha (uk2), who was dx with fibro, and still continues to exhibit symptoms of MS.

You will see she has been back on the forum lately and posting again.  Many of her tests were negative....MRI....LP, etc, but she continues to worsen and she has many symptoms that are more common to MS than to fibro.

The only fact I can relate is, if you aren't satisfied with this dx, then get a second opinion.  And yes, I would have the LP.

If you continue to have problems maybe your neuro would repeat the MRIs in 6 months.  Sam is scheduled for new ones here soon.  If you would like, you could talk to Sam about her experiences with all this.  It might help to compare what you are going through to what Sam has been through.

I wish you the best and hope that you feel better soon.

Take care,
doni