Have you attended any Shared Solutions luncheons?

[Lulu54]

I received an invite to attend an SS luncheon on Feb. 17 in the Dayton area.  I'm wondering if these are worth taking the time off of work to go.  Do any of you have any experience with these lunchtime presentations?

I'm got this because I am on copaxone, but I'm sure anyone is welcome to attend. It includes a "ask a doc" session and a talk by an MS patient.

Also, anybody in the southwest Ohio area planning on attending this one? PM me if you want more details.

Thanks for your insight,
Lu

[Lulu54]

Hi LD,
I wouldn't wait until Feb. 11 - pick up the phone and call Shared Solutions and get their financial assistance program request started now.  Welcome to our forum here - I hope you will find some beneficial company to help you out.  Stay in touch, ok?
my best, Lulu

[lavenderdreams]

I just received an invitation from Teva/Shared Solutions (for COPAXONE).  I took it for over 18 months and had great results on it.  Then I lost my health insurance and could no longer afford it.  I went to my county hospital in October and without an appointment not scheduled until Feb. 17th, they would not prescribe it.  They felt "it would be good to take a break and shouldn't hurt my therapy."  My neurologist was furious at the cavalier attitude with the county attending physician, but suggested that Shared Solutions may have a financial assistance program.  I am going to go on Feb. 11th in Los Angles to see if I can get some help.  This last week I have been experiencing an exacerbation that is affecting my balance...I keep falling to the right and my legs are very weak.  The fatigue is overwhelming.  I am hopeful that this will help my overall health.  I'll let you know if they can help me and keep in touch.  It's my hope that this will improve my quality of life.

[Lulu54]

THANKS T-LYNN,
EVERYONE'S POSITIVE COMMENTS ABOUT THESE LUNCHEONS MAKE ME WANT TO ATTEND ONE JUST TO GET A FEEL FOR HOW THEY ARE DONE.  I'LL WRITE A REPORT AFTER MY FIELD TRIP.

LULU

[young at heart]

LU,

I HAD RECENTLY ATTENDED A MS LINES DINNER,THE INFO WAS VERY WELL WORTH IT,IT DEPENDS ON WHOSE SPEAKING.

WE HAD A LOCAL MS SPECIALIST AND MY HUNKY NEURO SPEAK.THEY DISCUSSED RITOXIN,NOT MS APPROVED ,BUT SOME NEURO'S ARE USING IT OFF LABEL AND HAVING GREAT RESULTS.

IT JUST DEPENDS ON THE TOPIC ,IF IT INCLUDES NEW MEDS.

T-LYNN

[Lulu54]

Thanks Imax for the kind words - the MS patient speaker is an equestrian so perhaps I could learn something about completitive horse riding.  I think I will go just to see if there is a local neuro worth considering - right now I travel to Columbus to the MS clinic which isn't so bad.  

If anyone out there is in the Dayton area/southwest Ohio and is interested in meeting up to attend this luncheon, please send me a message and I'll give you the contact info.  Even though it is a Copaxone group I don't believe it is exclusively for TEVA patients - anyone interested in learning more should be welcome.

[lmax0021]

Hi Lulu

Funny that you ask....I went to a ms lifelines (rebif) luncheon today.  From the responses that I have seen you post to members, I would say you could give a better lecture.  It was pretty basic info.  However, they did have an ms specialist who spoke.  I really liked him and would definitely consider him for my own neuro.  

The best and most important part is that there was a Q&A session at the end.  I found this to be very informative. I also enjoyed the opportunity to get to speak to others with ms....and the food wasn't bad either!!!

I would encourage everyone to go depending on the topic and the chance to ask questions.

[GrannyJo6]

I don't know if I have ever attended a Copaxone one, but have been to others sponsored by rebif and avonex and the ms society. Usually pretty beneficial and free food! I've been to some really informative ones and a few that were so so. If it won't impact your work day too badly, it might be worth a try. Then you will know if you ever want to go to another one! Let us know if you go how it went.