MS and Pain

[jackie580]

I was dx'd with MS years ago today went for an IV infusion of steriods and mentioned that after the last round all of my pain was gone.  This nurse suggested that I might have RA because steriod treatment sometimes also works for that.  Now my doc's have run MRI's thinking it might be a disk problem but no there is nothing wrong with my disk but the doc never has a clue about the pain and all the pain meds I have tried don't work.  I have major problems with all meds.  I am now going in to get on the tysabri after trying all other meds.  Just wondering if anyone has heard like I just heard.  

Not really scared but I was like what the hell else can I have now.
Jackie

[jackie580]

Shelly
Thank you but I have wonderful insuance.  I don't pay for any treatments at the hospital just meds and I have done all the meds and nothing helps.  Steriods seem to be my love right now as long as I do the IV steriods.
Jackie

[sllowe]

Jackie,

I could be way off on this, but your Dr. may be able to make a case for you regarding prescribing this for neuropathic pain.  That would be a symptom related treatment.  Not treating your MS, like Tysabri....

Need some insurance folks to come in and add on to this one... no reason for you to be withheld treatment by your insurance co. for your pain....it's BS, and gets me a little fired up...

ttys,
Shelly

[jackie580]

thank you very much yes my new neuro has given me lyrcia but insurance won't pay cause it is not for ms instead for fibro and a I got 6 months free but can't get anymore. I am just so tired of fighting.
I start my tysabri after my husband and I go to my next appt which is next month so not too far away.  I am scared as hell about trying something new.
Jackie

[sllowe]

Welcome to the MS forum Jackie.  Hoping I haven't done so, so you don't think I'm looney...lol

So sorry the meds have failed you.  I'm glad the steroids helped you and that they followed through w/checking your discs.  They now should know that it's you MS and typical pain meds won't touch it.  

Some doctors do not recognize the pain associated with MS.  It's written about, but guessing it wasn't a part of their primary training and if the Dr doesn't keep up on studies and new information revealed in MS, they just have not clue (my opinion anyway). It might also be because they don't have lots of MS patients.  But pain is very real, and we all know it is here.

Hey, that reminds me.  We have an unbelievable write up on our health pages about PAIN! You'll find it so educational.  It describes different types of pain.  Please, check it out, and feel free to print it out for this Dr if you like.  It was written by a pain management Dr. for us and we are so grateful.

When do you start Tysabri?  Hope you will stay with us.  We do have a couple others on the forum now who have exhausted the meds.  And, Deb61 who's sister is on the Tysabri and doing well with it.

Again, welcome,
See you around,
-Shell

[jackie580]

Oops hit the wrong button there.  I think that is how it is spelt all I know is it is severe joint pain that I have had for years and neuros keep telling me that it is not an MS thing it is probably a disk problem which I have had MRI's for the disk but nothing so then off to physcial therapy who says it's not disk.  I know it sounds really bad but I am actually hoping that it is this RA because my pain is gone and all I do for it is iv steriods.  

I used to hate the steriods but since my new neruo gives me scripts to off set the nasty feelings I love doing the steriods now.  Now that I take this I can actally work and feel like a normal person. Not just an MS patient. I'm sure you know how that is.

Thank you
Jackie

[jackie580]

Rhemtodiod arthistis I think that's how's its spelled.

[mae1]

I'm sorry but could you tell me what RA is...
I'm sure I'll feel real silly when you say lit heh,heh,heh..
april