This fatigue is devestating

[Zacksmomi]

Hi all,
Since yesterday I have barely been able to lift myself off the couch.  My poor husband, last night at 6pm I looked at him and said "well that's it, gotta nap right now" and that was the end of me for the night.

He has been taking good care of me when my fuse runs out at night, but today the little energy I have during the day has not returned.  There are a few things I have to get done so I am just taking it slow.  

My legs have been becoming less and less cooperative over the last few months.  Two weeks ago I was thinking relapse, but then all of a sudden my strength and energy went way up.  Last Wed at PT I actually did a full hour and threw in some strenghtening exercises instead of just stretching.  

I paid for that though. I have gotten progressively worse since then.  My spastic hip muscles and right leg muscles became very combatant.  I feel like I am dragging my legs around with me.  

Is it possible this overall fatigue I am dealing with is because of this fight with my legs?  Can the battle to walk honestly make my whole body this tired??

Thanks
D

[supermum_ms]

When i first joined the forum there was a thread about symptoms in order of being a problem to you, back then for me i think i wrote cognitive, fatigue then mobility, i was still having trouble communicating because i'd lost my nouns. Now they are as back as i think they are going to be, still get hit with word retreval but in comparrison to how bad it was its all great.

Fatigue though hasn't shifted much at all, i'm not sleeping 16 hour days like i was when this episode began but i'm still not my normal self but at least i'm awake now. I didn't actually realise others could see my fatigue, i try and fake it when i've got people over but it seems i'm not doing a good job. My mother called because she wanted me to know she'd watched me decintergrate before her eyes in only a 2 hour visit, basically no one is satisfied with me being wiped out all the time.

Sorry but so far i'm just hanging on and doing the best i can, I wish i had the golden ticket and could give you the solution to this one. Fatigue is now at the top of my list and i'm still stuffing so much energy food in my mouth but its not working, so i dont have the answer, wish i did though.

Cheers........JJ

[Zacksmomi]

Thank you for your replies.  
I sure do learn a lot here :)

I see the neuro on Dec 17th.  If I can't make it that long I am sure he will get me in.
I am not  sure I can drive the 45 miles though.  Time to rely on others.  Thank goodness for friends.

D

[Wobbly]

I use Amantadine, it helps temporaily, but I can't stand the zonning out feeling I get with it.. it give me energy, but only for awhile... but if  it helps that would be good

take care
wobbly

[jed9999]

Hi--I'm afraid you're describing what many people with MS feel. I'm having it quite a bit now myself and never have really before. I thought I was part of the slight MS statistic who didn't have it as a main symptom-well, guess I was, but now everything has changed. That's one thing about MS-it always keeps us guessing and analyzing. Sure it's possible this is a result of your efforts to walk better. It is all a battle and because we're all connected, one part can certainly affect others. I think the reason people can still climb mountains and run marathons is that their MS just has not yet progressed. I can't think any really heavy exercise is good for us! Sleep has always been my best friend MSwise. I hope you can recover with extra sleep--and me too. Jane

[essdipity]

Yes, what you wonder about is sure possible. Please take a look at

http://www.medhelp.org/health_pages/Multiple%20Sclerosis/Fatigue-in-People-with-MS/show/63?cid=36

for a lot more info on this.

Do you have any anti-fatigue prescription? There are several. I was given Amantadine a month or so ago and it didn't do diddly for me, let alone squat, but it helps lots of people. You need to talk to your neuro about this.

Sending good wishes,

ess