Hello, new and semi-diagnosed having questions

[Jazzyfizzle]

Hello everyone, I am new to the forum. I have questions that I would love to ask. I will give a bit of history of my situation.
Approx. 4.5 years ago I was your average, mostly healthy person. I worked many hours at a landscape/nursery company and had two sons at that time. Took care of all the household chores, that type of thing.
I began having serious pain in my upper abdomen and went to the family doc. He basically brushed me off with no idea of what was going on and didn't seem concerned at all. I was in severe pain, so I phoned back (after friends suggestion) and asked if he could look at my gallbladder. The pain was the worst directly after eating. He did this and said it looked alright.

Shortly after I found out I was pregnant. Just a few more weeks into the pregnancy I became worse and worse. Trips to the ER, they told me I was just 'overdoing' it. I was couch-ridden so this certainly wasn't the case. My legs truly felt like I was dragging concrete blocks. There are many details, but it would be a very long post LOL, so I will cut to where I went into labor at 27 weeks. Still our hospital could not figure out what was happening, so I was sent to big city trauma hospital. My husband said they had some answers in about 30 minutes. I was in a Dka (went into a diabetic coma), my blood sugar was close to 1000. I had pancreatitis and gall bladder disease. I delivered the baby premature and slipped into the dka and woke at a later time in the Icu. My baby survived with 73 days in Nicu and is doing well now.
After I was moved down out of icu to risk maternity, I began having severe vision problems. They had stabilized my blood sugar. They would bring me a menu to read, as I tried to read across a line, my eyes would jerk back in the sentence, what a scary experience. This continued for days then subsided to some degree.

After coming home, things continued to go downhill.
Debilitating fatigue to this day, I can't express how severe it is
Terrible lymph node swelling and pain (L side only), severe joint pain
The legs are torture, such pain, stabbings, 'buzzing' (does that make sense?) shocking feelings, numbness, incorrect sensations (such as wet when actually not)
When I lift my arms over my head to curl my hair my arms go immediately numb
So much trouble swallowing that I have almost choked on pills
The bottoms of my feet are torture, walking on them is agony
Muscle spasms, 'charlie horses' in the legs, just terrible
Weakness, I cannot open or lift anything now
Mental function is not good, I get confused over things such as the checkbook now, I cannot remember people's names, I feel like my head is literally full of 'foam' or fog. Does that make sense?
I am running into walls, I know this sounds so wacky, I run into corners when I think I have made a clear distance around them! I dont' know how I can keep doing this.  

Here is what I have for medical -

My gall bladder was removed, I continued to have chronic intermittent pancreatitis
The pancreas also stopped doing it's digestive function, so I have to take meds to help digest my food
I became a Type 1 diabetic at age 36 with no family history at all of diabetes, I am now on an insulin pump


I was referred to a wonderful Neurologist who listened to my troubles right off and set out to try and help me. He has been a Godsend.

The brain Mri showed something, he really wasn't specific in telling me what he thought, and in retrospect I should have learned better and asked. He said that it looked as if I had several strokes during the Dka and showed on the Mri.
I have had 2 Emg's of the legs that show Neuropathy in both legs
I have shown 'brisk reflexes' ?
I have sky high Epstein Barr levels in the entire range, the Neuro put me on Anti-virals and they have since some down between 200-300 points and it has helped a deal with the fatigue. I am not sleeping all day and night now.

Recently I was at a disability hearing, which I thankfully won after all this time being off work. The government doctor told me, that in his mind I have MS.
He talked much more about my brain scans, and stated that I have a large amount of 'white matter', that my brain looks worse than a typical 70 year olds. The judge, admitting that she is not a doctor, said from her experience she agrees. They both suggested I have a fresh Mri done.
I am to see my Neurologist again the end of this month.
Could anyone give me their opinions on my situation? I am sorry for the length of post, so much has happened and I know I am forgetting to include so much.

Thanks so much

[EL18]

Hi Jazzy, I'm pretty new the forum too and still learning so much from the 'experts' on here, the advice has been so useful, as has the support.  Like Anegla said I am to unable to offer the answers you are looking for but I know others on here will, so sit tight and wait fo the reponses to come in. I just wanted to say heloo and welcome you to the forum.

Stay in touch

Em

[angela5674]

Hi Jazzy, welcome to the forum.  I'm new to this whole thing too.  Just had an MRI done 6 days ago that showed a total of 4 lesions (3 in my brain, 1 in my cervical).  Unfortunately, I don't have the answers you're looking for, but you came to the right place to get answers and support.  I just wanted to welcome you and tell you good luck on this journey.  It's a frustrating one, and one that needs a lot of support.