Help on my journey

[UnsureMS]

A bless day to all. First off I want to start by saying thank you to anyone who can give me more information. I am 28 yr old female who 4 yrs ago developed a severe headache that lasted a week, then started to have dizzy spells for a week, and finally felt this tingling sensation in my right leg arm and face. That scared me info to want to go get help. I don't have insurance so I went to this clinic. There after some bloodwork it was decided that I had an autoimmune disorder. But the clinic didn't have access to Specialist or X-rays. So I got on this medical program for one year. During that year fibro was ruled out, and b12. I had an MRI that showed one lesion that may have been cuase of the nonstop tingling in my right leg. I had an LP but nothing was shown there. I had my nerves tested and nothing there. I had a lot of bloodwork, but since I was just worried and unsure what to think, I didn't ask any questions really. My Nero told me suspect MS, but that it takes time to dxs.

The year ended and I was dropped from the health program. But today I begin my journey toward a dxs agian. I am back on the program maybe for a yr, but at least it's help for a bit. The thing is I want to know what I should be asking this time around. Also, what I should be looking out for.

Here is a bit more background to further give everyone an idea of what I am going through. First off I have had migraines since I took my first steps. I never have had a true fever. Nothing above 89.9, even when I had the chicken pox, the flu, mono, and the many sinus infections. About 5 yrs ago I found a cyst behind my right ear pop up but it was nothing. I also have a high tolerance for pain, so when i am in pain it most likely is severe. My mom says when I was extremely young I had blood in my urine but nothing came of it. Cancer and mental issues run in my family but nothing else. Although one of my cousins have Crohn's disease, and another is going through what I am(no dxs).

Recently my feet feel stiff, my hands tingle, I get sharp pain in my shoulders that only last a second. Right above my wrists are swollen a lil, and I feel so tired. My knees have been in pain to and at times feel stiff or pop. I also have had issues with my stomach I feel pressure in the lower right abdomen at night sometimes. This cuases me to feel like I constantly need to pee. I also get stabbing pains in different areas of my stomache. I have had ringing in my right ear off and on. My dizzy spells, headaches, and the tingling sensation are still around. The tingling has gotten more persistent in both my legs now and my whole face.

I know this was a lot of info, but I just want to be armed and ready to help find a dxs in this year. So if you feel you might be able to tell me what autoimmune disorders to be looking into, or some questions I need to ask I would be grateful. God bless you all.

[UnsureMS]

Thanks for the response. Yeah it's crazy cuase migraines run in the family my brother from a young age up until recently was on meds for them. I on the other hand always coped through. But when I had a headache for a week it really drove me nuts. My Nero was the one that was concerned about MS.

Due to these forums and research I am not sure myself. I really don't feel the fear myself...see I believe everything is for a reason. It's just my family does. I want to be independent still, but they want to crowd me. I get it though. I had a bad dizzy spell one time and burnt my arm real bad it left a huge scar. That happened at work no one saw it happen, and since I don't feel pain like most I didn't realize how bad it was. So they worry I am gonna over do myself.

Well, tomorrow I make my first appt., probably for some time next week. It's funny but now my sxs aren't acting up as bad. I pray the doc can still figure it out. Thanks agian!!!

May God Bless You,
Kimberly

[sllowe]

HI there,

Sorry for what you are going through. I think I mentioned this before but week long headache, lifelong migraine is something that should be a huge concern to any good, thorough neurologist.

That would be my first question to the doctor. Why do I get these headaches, and describe the history and migraine, and the ongoing symptoms you are experiencing. It's important. MS is a whole different path to go down.

Wishing you well at your appt. and with your family. Fear will eat you and those around you alive. I hope too you describe this feeling to your doctor.

Let us know how you make out.
-shell

[UnsureMS]

Thanks for your response. I have read some of the health pages. I looked over some of my old notes. Rheumatoid athitris I believe was ruled out but my sxs that I started out with were a bit different when this all first came on. I don't know much about Lupus. I may have to read more on this. I just know that my Nero was leaning toward MS, but lately I have wondered myself.

Still I don't know if anyone else can understand... but right now I feel as if fear is over my family. My husband, mom, and all my family can tell this taking a toll on me. They sometimes fear the worse. My husband fears losing me to something and he had cried over this many nights. My mom fears how bad it is gonna get the sxs have gotten worse. So a dxs for me would give them all answers. So I pray just for an answer. And honestly for one my family can handle. Thanks agian. May God bless you.

[Lulu54]

hi and welcome!  What you are describing sure sounds like a neurological problem, but it doesn't quite fit the MS picture.  Keep in mind I am no expert and these are just educated guesses.  I wonder if you have been screened for Lupus or Rheumatoid Arthritis? Your joint pains make me think of that.  It is always possible that you have more than one thing going on, too.  

We have great health pages here - you can their link on the right side of this page.  I hope your will take some time to read them and learn more about MS.  I am so sorry you are suffering with this without any answers.  

I hope we see you around soon.
best,
Lulu