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Help with DMD
Just trying to get my head around starting drugs have known had MS since 06 listed as proable until next relapse although they were sure I had it two weeks ago half head went numb now have to decide which I want to take I am leaning towards rebif any would be great . Trying to navigate the site and I am a bit lost
Well I made my choice and was on rebif for three months then the liver enzymes came back 4 times higher than they should. Then second blood test two weeks later showed two hac come down and two had gone up took me off rebif. so now its copaxone or gilenya not sure hope nothing else it making my liver be so high
Hi Clokie,
This is a draft Health page on the DMDs. While it needs some repair, the main points of DMDs are there, i.e., All the DMDs can reduce relapses and prolong progression from MS.
One thing to strongly consider in your decision making is the injection schedules. I'm on Rebif, it's 3 times a week sub-q. Avonex is once a week intramuscular and Copaxone is once daily sub q.
Also, don't forget that if you find the med you pick doesn't work for you for one reason or another short of an alergic reaction you can always switch. I pass this along to others in the same situation as you because it's something we don't often think of. I know I sure didn't. I thought, oh I better pick the best one, one that won't hurt me or cause me problems, etc., etc. I know better now. It's more of a matter of making a decision and then just following through and giving it a shot (literally).
Thanks for joining us,
Shelly
HP - http://www.medhelp.org/health_pages/Multiple-Sclerosis/DRAFT---The-Disease-Modifying-Drugs/show/1192?cid=36
This is a draft Health page on the DMDs. While it needs some repair, the main points of DMDs are there, i.e., All the DMDs can reduce relapses and prolong progression from MS.
One thing to strongly consider in your decision making is the injection schedules. I'm on Rebif, it's 3 times a week sub-q. Avonex is once a week intramuscular and Copaxone is once daily sub q.
Also, don't forget that if you find the med you pick doesn't work for you for one reason or another short of an alergic reaction you can always switch. I pass this along to others in the same situation as you because it's something we don't often think of. I know I sure didn't. I thought, oh I better pick the best one, one that won't hurt me or cause me problems, etc., etc. I know better now. It's more of a matter of making a decision and then just following through and giving it a shot (literally).
Thanks for joining us,
Shelly
HP - http://www.medhelp.org/health_pages/Multiple-Sclerosis/DRAFT---The-Disease-Modifying-Drugs/show/1192?cid=36
Hi Clokie,
You mentioned you were having trouble navigating the site. A good place to start is the Health Pages. They are located at the upper right hand corner of the page, next to the yellow icon. These contain a wealth of information.
If your specific question isn't found or the list of subjects to large to tackle, you can always go to the "Search this Community" site.It is surrounded by a green bar and you may ask any specifics you may have. It will search the archives as well as the Health Pages to offer you posts that meet your question.
On your personal page, you can send notes which are public and can be viewed by all or you send a private message, usually referred to on here as a pm. It is seen only by you and the person you sent it to. Please remember this site is open to general public and therefore anything you post is visible to any one , friends, work place, etc.
One last thing , please post any questions in small paragraphs ,like I have tried to do (LOL) because some of our members have vision problems and can not read large blocks of typing.
Welcome to the site and remember, no question is off limits unless it is offensive in nature. We 've talked about everything from our favorite flavor of ice cream to urinary incontinence products.
Ren
You mentioned you were having trouble navigating the site. A good place to start is the Health Pages. They are located at the upper right hand corner of the page, next to the yellow icon. These contain a wealth of information.
If your specific question isn't found or the list of subjects to large to tackle, you can always go to the "Search this Community" site.It is surrounded by a green bar and you may ask any specifics you may have. It will search the archives as well as the Health Pages to offer you posts that meet your question.
On your personal page, you can send notes which are public and can be viewed by all or you send a private message, usually referred to on here as a pm. It is seen only by you and the person you sent it to. Please remember this site is open to general public and therefore anything you post is visible to any one , friends, work place, etc.
One last thing , please post any questions in small paragraphs ,like I have tried to do (LOL) because some of our members have vision problems and can not read large blocks of typing.
Welcome to the site and remember, no question is off limits unless it is offensive in nature. We 've talked about everything from our favorite flavor of ice cream to urinary incontinence products.
Ren
I am on Rebif. I have had reactions to the shot only twice. Both times it was flu like with chills. It doesn't happen often but ...I had decided even if I had the reaction each time? I would continue taking it. I want that 33% chance of not having another attack! I take Advil an hour before. I make sure to massage the shot site a few minutes and ice each time. It all helps.
Hi clokie, there is a great resource on the British MS site that may be of use to you - it walks you through the dmd choices and helps you understand a bit more .....
http://www.msdecisions.org.uk
Just ignore the piece about being in the UK. The drugs are the same regardless of where in the world you live.
Making a choice can be tough - good luck with his. Sorry you have MS but I am glad you are going ahead with treatment. It really is our best option for slowing the progression of MS.
be well, Lulu
http://www.msdecisions.org.uk
Just ignore the piece about being in the UK. The drugs are the same regardless of where in the world you live.
Making a choice can be tough - good luck with his. Sorry you have MS but I am glad you are going ahead with treatment. It really is our best option for slowing the progression of MS.
be well, Lulu
Hi Clokie,
So sorry to hear you are going through a difficult time.
I have been of Rebif since Feb 2010.
The shots are not nearly as bad as I thought they would be. I'm very used to them now. I don't suffer from the flu like symptoms as long as I take advil before my shot, and sometimes have to take it the next day. I did have some minor site reactions when I first started but I don't have any now.
Good luck to you. If you have any other questions for me, feel free to send me a personal message.
So sorry to hear you are going through a difficult time.
I have been of Rebif since Feb 2010.
The shots are not nearly as bad as I thought they would be. I'm very used to them now. I don't suffer from the flu like symptoms as long as I take advil before my shot, and sometimes have to take it the next day. I did have some minor site reactions when I first started but I don't have any now.
Good luck to you. If you have any other questions for me, feel free to send me a personal message.
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