Thanks for your advise and support. In answer to the question - I live in Oregon. I am thinking I will give the Med School a little longer and see if they will see me. If not will look into finding someone south of my home area (Eugene isn't too far) or in neighboring states. There isn't a MS clinic that will see me without a referal from another Neurologist, that I can find in Oregon. Appreciate your insight. I keep thinking I am over reacting, but then again I've had "episodes" off and on for over 10 years and this time the numbness hasn't left.
Mooselady, I'm kind of in the same boat. Here is what happened to me, and hopefully it will help you. I was dx with probable ms after a bout of optic neuritis lead to an mri and behold I had a lot of lesions. This sent me to the neuro who was already treating me for my tremors. He said that based on the mri, tremors & ON, that he gave me the dx for probable ms.
So I went for more tests to get a definite dx of ms. They all came out normal! So the dr says I do not have ms, well possibly, but we'll have to wait and see. He thinks that I was now born with the lesions and he'll see me next year!
So........I went online and looked up all the neuros covered by my ins co. Then I checked the MS websites for recommendations for clinics. I then narrowed the list down and I called them. I stated I was dx with probable ms (I was at one point) and I wanted a 2nd opinion. She then just told me what to bring to the appt.
If I were you, I'd just call and say the same thing I did. It's on the radiologist report, so your not making anything up, just stretching things a little. And if that doesn't work, maybe check outside of your state if that is possible for you.
Anyway, hugs for you, as I know this is no picnic.
Hi Mooselady and welcome to the MS forum. Wobbly is absolutely right that one year is entirely too long to wait. Six months would be more reasonable for a recheck.
You don't tell us what state you are in or if you are in the US - someone here may have some experience in your area if you can tell us.
It is not sufficient for a doctor to say you have lesions, they don't know why, and to come back in a year. That's poor medicine.
I hope you will keep us posted on your search for a 2nd opinion.
my best,
Lulu
Hi there... I think a year is abit long to wait...I too have brain lesions and other tests were normal...I've been searching for a few years now...but I usually have a MRI every six months to look for changes.. and track my symptoms... like a timeline when they start and stop... if I have new ones etc...
call your Dr and ask for a second opinion or call the Neuro and request another MRI in six months from previous one...see if they will help with this..
let us know how it goes..
wobbly
undx