I've been on Copaxone since November. I couldn't risk all the flu-like symptoms of the others because of work. Plus having to take it everyday is easier for me to remember it cause I lose track of the days easily when I'm gone for work.
I talked with Lulu and she told me about the new doctor I'm gonna see at OSU. Now if that day would hurry up and come that would be great. lol
Hey there,
I'm glad to hear your state of mind is pulling you through to this next phase. I hope it's not SPMS, but agree with what has been said, that the RR (albeit it weekly, monthly, etc) would have to give before they dx the next. Also (this is only my opinion) I think you can be left as RR so you can be treated. Did you start a DMD - remind me please!!!!!
If not, if it were me, I'd go w/the strongest (excluding tysabri for now) and go w/Rebif or betaseron. That again, is just my opinion. Don't get me wrong, I think they are all good for decreasing odds of progression, but just feel the interferons have a longer track record and dosing is pretty high. If I were experiencing what you are, that is what I'd do.
YOu sound to me that your in this fight - so know I'm (we all are) right there beside ya!
-Shell
Hi! I am so sorry for what you are going through. I have heard that it is a year with no remission also but my mother-in-law has PPMS and it took way longer so who knows.
I have RRMS but am convinced it is SPMS so I asked the neuros. I have had so many relapses in the last 18 months its more like a big huge one. Where's my remission darn it!
Anyway, the doctors told me that I have been under an enormous amount of stress (very true) and that when we stress, we regress. In other words if I could get my life to be less stressful then I wouldn't be one big ball of MS problems.
I'm working on the less stress but that's a challenge.
Good luck
Erin :)
I've heard it takes a year, but just wasn't sure. I had thought originally that things would gradually show up over a span of years. Not all of it happening this soon. Just really caught me off guard and more worried as to what and when things are going to happen. Everyday I pray that it doesn't happen to me at work. If it does I don't know what to do because I won't be working anymore at my job.
Nice to see you again, Chad. It sounds like you're going through a great deal, and I'm sorry for that. What medications does your neuro have you on?
To the best of my knowledge, doctors won't diagnose PPMS until a year of unremitting symptoms has passed. I hope that's not what you have but it may be too soon to tell. It's good you're being sent for a referral. We have a lot of Ohio members, many of whom report satisfaction with the OSU MS doctors. I'm sure some will see this and chime in.
Please don't be a stranger. Good luck to you and let us know how things go.
ess