Hi guys, Happy New Year ....

[candy158]

Hi guys, I have a question and would appreciate any feedback good or bad that I can take with me to my Neuro appt. on Friday.  

I want a DMD, as I am getting new symptons and such ,

I have tried without success :  Copaxone, 2 x ..... , Avonex ..., Aubagio .... ( sent me to the hospital) ,

Now I want to try Tysabri, I know there are a few people on here that are on this drug.  Also, Gilenya, any reactions and side effects or success.   I read about Gilenya, and the symptons are pretty much the same as the Aubagio.

I am tryingto go into my neruo appt. with information, and a decision as to what I want to try.  That seems how you have to do these things with my drs.... they need you to be informed, as they are to busy to give you information.  ( yeah, you read it right) ..... So, I go into the office with what I want to try, and why, and I understand the side effects and PML too.

Any suggestions that I could take with me to my appt. would be appreciated.

Thanks,
Candy
Cheers !!!   :)

[candy158]

thanks Alex, heh, how are you doing?  PM me if you would like <3

[HVAC]

There is also Rituxan. I have several friends who are on it who like it. For one thing it is less infusions. You have it once then in a few months and then its like every 8 months or a year.

Many people do well on Tysabri. Again it is the one that works for you everyone is different. I have heard mixed things of Gilenya and Tecfidera. You just have to try different ones and hopefully one fits.

Alex