How many of you had an early hysterectomy/endometriosis?

[MrsAristotle]

Over the last 2 years I have noted something very interesting. I have met quite a few women either with MS, or in limbo land who had an early hysterectomy and endometriosis.

I am wondering if there is a link.

I found some research in the USA where 100,00 women with endometriosis, 516 developed MS.
100,00 women tested who didnt have Endometriosis, only 73 women had MS.

ALSO fibroymayalgia comes up high too, Out of 100,00 women with endometriosis   5,897 got Fibromyaliga. 100,00 women who didnt have Endometriosis 3,400.

Also Lupus comes up high too. Out of 100,00 women with endometriosis,   842 develop Lupus.
100,000 women without endometriosis only 41 developed Lupus.

When you look at the percentages above they are quite high arnt they?

How many of you on here have had hysterectomy and the above illnesses?

I am going to send my findings to my neurologist just out of curiosity.

I had endometriosis and an early hysterectomy I was about 25. I have either Lupus or MS type illness.

Perhaps when we are diagnosed with endometriosis we could be charted for further problems or something could be done to change this or something???

Sorry brain isnt in gear this morning. Think i have a cold coming.

[jla3737]

I was had ovarian cysts removed at age 12 and after 3 yrs of misdx's, I was dx with endo at age 15.  I have had serveral laps, been blessed w/ 2 beautiful children who were both delivered by c-section, and have been on numerous drugs.  In April of 09 (age 28, I went to my obgyn to request a hysterectomy.  At this point I was completely sick of my periods controlling my life.  They would last 2-3 weeks with extremely heavy bleeding and cramping and I could barely do anything.  When I wasn't on my period, I was playing catch-up from all my down time with pain.  She recommended continuous bc.  Which I did from then to last month, when I started bleeding continously for about a month including cramps!  She put me on the dreaded Lupron for 3 months.
After I saw some one eles say something about endo and ms, I decided to search it and found this.  My mother, who had serval miscarriages and was probably never diagnosed - not surprisingly, also had ms and fibromyalsia.  She couldn't take the pain anymore and completed suicide 13 years ago.  It scares me to think that I could be going down the same road.  I also would be interested in taking a poll or survey.
Jen

[Tammy826]

I had endometriosois at 19 & a hysterectomy at 31. Had R.ovary removed 3 yrs ago due to hemmoragic cyst & I'm probably going to have to have the L. ovary removed also due to cysts. This is very interesting! I am now 40 & in the probable MS category though I'm still not dx'd.

[shawnie31]

Made a typo in my post. I stated I took steroids for Crohn's for 1hr.. I wish. I took them for 1 yr.

[Wilmaflinstone]

Hi weemee I was also told in 07 I had PA! Strange how we all seem to have lots of side line illnesses in common too isnt it! Did you know you can have neuro damge as a result of the PA too....I was left until the very late stages before anyone would actually take notice or test for B12 def, and Ive ended up with damage as a result of this. Being managed and also on monthly B12 Injections now which helps lots....but still no firm dx of MS althought for 2.5yrs now my Gp and a hosp Dr have insisted I have PPMS........Apparently because of the McDonald Criteria its making things harder to dx and I only had one cluster of leisons back in 07 at last MRI but been referred for another one with an MS specialist consultant so see how that goes at the time!! Oh joy!! take care xxx

[shawnie31]

Hi there,

Here is my story. Sufferred with lower pelvic pain for seven years, which was very debilitating at times. I was told I had Crohn's, I took steroids for 1 hr. Pain didn't go away. Gynecologists refused to look into this more stating it was my bowels. 7yrs later after seeing several gynecologists I finally found one that believed me and found that I was full of endometriosis. I took Lupron Injections for 8months all my pain went away.

Total hysterectomy done at 33. My bowels have no sign of Crohns to date.

I am awaiting a third neuro's opinion all the MS mimics have been ruled out so far. MS Neuro said my spots are possible Virchow Robin Spaces, and said I didn't have MS "today".

I am a few weeks shy of my 35th B-day. remain un-dx

[Wilmaflinstone]

Very Interesting Maria.....I was dx with Endo in 1999....suffered horrendously with it but no hyst...however after 3 ops Im now managing it great with treatment....but what interesting findings!! xxx