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I feel like I'm jumping out of my skin. Not Dx'd yet.

I have had a majority of  the test done other than a spinal MRI.  I've even had a special Lyme's disease test.  Everything was normal accept they found numerous small lesions on my brain MRI.  None around the ventricles.  Report stated "not consistent with MS".  But I have symptoms ongoing for months.  Twitching, tingling, pain in legs, upper back tightness.  My most recent problem is I feel like I'm jumping out of my skin.  I can not sit still or lay in bed without tossing or turning or moving around.  It seems like an anxiety attack that never ends.  Is this restlessness from MS or is it more anxiety with me constantly thinking this is MS and I am going to not be able to walk in the near future?  Any advice would be greatly appreciated.
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Avatar universal
Just to let you know,  Lyme disease testing is only accurate 50 percent of the time.  The tests miss more cases than they detect. Crazy but true! I had over 10 Lyme disease tests. They all came back negative,  even though I was so sick with it.

I always tell everyone who has MS symptoms but can't get an MS diagnosis to look into Lyme disease.  Lyme disease can mimic all the symptoms of MS

If I were you I would post in the Lyme disease section right here on MedHelp.  The people in that forum are extremely helpful!
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667078 tn?1316000935
Make a short list of symptoms for the doctor.
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667078 tn?1316000935
I have had MS for over 50 years and I am still walking so I would not worry about that just yet.. Each case of MS is different. It is up to the neurologist to decide if it is MS. It can take awhile. They like to follow a case over time. Have you ruled out disks in your back or neck? MS usually starts with the head so symptoms are high such as in the eyes, brain, or neck. Mine started with double vision and difficulty swallowing. Then balance, head aches, cognitive problems, and weakness on my left side.Then in my 40's my walking got slower.

Alex
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That's the weird thing, I really don't have any issues above the neck.  Maybe an occasional headache.  I'm also surprised the doctors have not asked for a spine MRI to rule out disk issues.  They did do a full spine xray that was normal for the most part.  I'm seeing a MS specialist at the Cleveland Clinic on Monday.  Hopefully I can get some answers.  I have never taken a med in my life and now all I can think about is taking Clonazapam to help me relax and sleep.
One weird symptom I have in my head is my teeth chatter when I lay down on my bed.  I'm not cold, but they still chatter.
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