I just saw my LP results online.

Question

My doctor didn't call me yet but I just saw that they posted my results online. 

Everything says Normal.  Yay! 

So I guess I just have extensive periventricular white matter lesions from migraines and the two concussions.  I guess the occasional balance issues as well as other issues are nothing.

rendean · Accepted Answer

My LP was normal as well. I was tested with EMGs, clinical exams, etc. A phrase I just read on an MD blog (Jonathon Howard)  regarding MS diagnosis is "tincture of time". His professor used that term and it meant to him that given time, MS WILL show itself.

 "If someone believes they have MS and their doctor does not feel that have MS or is unsure of this diagnosis, simply waiting will reveal the diagnosis. Patients with relapsing-remitting MS will eventually go on to have additional relapses, while patients without MS won’t. Additionally, the MRI of patients with MS will eventually show lesions consistent with the illness, so repeating the MRI after a certain amount of time has elapsed is never a bad idea in cases where the diagnosis is not clear.

Patients who are told to wait until time clarifies the diagnosis should know that in almost all such cases, a delay in starting medications will not affect long-term disability."

http://www.healthline.com/health-blogs/perspectives-in-ms/tincture-of-time

While I was being treated with "tincture of time" my symptoms were treated and brought under control. It took 5 years for MS to declare itself the culprit.

Just some food for thought. All of the other entries written by Dr. Howard are informational and enlightening as well.  Hope this helps.

Ren

SarahL2491 · Answer

mine were back in a week from an independent lab

sandythegeek2 · Answer

Sho, I had the LP on the 15th. Last Tuesday. It hasn't been very long yet.

shoshin · Answer

When did you have your LP? The o-band tests are usually sent out to a specialized lab, which takes a week or two. On my results, there was then a separate document with the number of unique o-bands and a narrative explanation.

sho

SarahL2491 · Answer

your results are fine, stop worrying
there are lots of extra technical notes that are just part of the menu driven

that sentence in plain english says it was put into electronic form and he gets a tickle reminder in his email to read them as they are ready

sandythegeek2 · Answer

I just noticed the O bands and a few other results say normal but they have Asterisks next to them that says:  

Specimen collected and sent out for testing by
clinic lab.  Results will be scanned into the
electronic record and the provider will receive a
'Review Document' task at that time.

I'm not sure what that means.  Don't know if the results are actually normal or if they don't actually have the results yet.  My clinic doesn't enter the right info in the electronic records that I get to see.  

I probably should shut up and wait to see what the doctor actually says and stay off of the electronic records for now.

SarahL2491 · Answer

I was 30 yrs from first flare to Dx.  I had my LP after my Dx.  I got a copy of my report in the mail (at my request) because I would not see my neuro for another 2 months after my LP.  I got my Dx from my MRI

sandythegeek2 · Answer

Sarah,  Have you been diagnosed?  
If so, how long did it take?
What did they say to you when they called you to tell you the CSF was normal?  
Did they schedule you for other tests right away or did they just assume it's migraines or something and give you meds for that and forget about it?

SarahL2491 · Answer

It's ok sandy mine were normal too!
Welcome to the 2% club (grin)

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