Results of Neuro Appt

[SueFern]

Hi Everyone,

So I went to the Neuro on Friday.  I needed the weekend to digest everything.  She was very thorough.  She looked at my MRI from the beginning of Dec. and said it wasn't conclusive of what is going on.  I just have the one small lession on my brain and she did say she thought she spotted something on my cerivcal spine but without contrast it was hard to tell.

She basically said I have delymination of my central nervous system.  She said sometimes people have issues with this because of the way your body reacts to a virus or stress and that you get it once and then never again.  However, she did mention MS several times and said that I am possible MS so she wants me to get a follow up MRI in the beginning of March of the brain, cervical, and thorastic spine with contrast.  She also wants me to get a VEP and additional bloodwork to test for Lymes and a few other things that my primary care doctor hasn't checked for yet.   She said she could do a lumbar puncture but since my last epsiode started over 3 weeks ago she said the results would be inaccurate since it is better to test that way right in the beginning of your episode.

Also she said I have spastic reflexes.  Anyone else have this?  This is making her curious as to what shows up on my Thorastic spine.

So as I am slowly feeling better I am praying that this is just a one time thing.  March feels forever away to get more definite answers, but she wanted to wait three months a part from my last MRI to have a good comparision.  In the mean time I get my VEP done and wait for the results of my bloodwork.  I also need to pray for patience!!!!

Susan

[SueFern]

Thanks everyone!  I am so glad to have found this forum!  It is nice to have some people that can relate to what I am going through!!

Lulu - In regards to the lumbar puncture I am going to ask her when I see her in March.  She told me so much info that maybe I miss understood something, but I am almost positive that is what she said.  I know you can check for other diseases in your spinal fluid as well.  Maybe she meant that too much time has past for it to pick up if it was because of anything else.  I am not sure how the o bands work with diagnoses, but I have heard it can be inaccurate as well.  I thought some people can still get negative LP but still be diagnosed with MS.

Thanks again!

Susan

[RedFlame]

Hi Susan,

You have allot of things going on right now and I'm sure it is difficult to digest all of it.  Hopefully, you won't need to do a lumbar puncture and of course we hope you don't have a demyelinating disease!

I know it's hard to wait---I guess the only good thing is that you are in good company here.  Hanging out here will help pass the time I think.  We are almost into February though.

The reflexes are part of MS as well as many other neurological diseases.  MS usually presents with hyper-reflexia.

Hugs,     Red

[Lulu54]

Susan,
This is a very slow process normally to get to a diagnosis.  MS is a dx of exclusion, and everything else has to be ruled out, first.

I am concerned that she made the comment about the Lumbar Puncture - the length of time to wait is irrelevant when it comes to catching signs of MS.  Once the o-bands are present in your spinal fluid, they will always be there, from what I understand.  They don't go away.

I know this can be very trying - especially since you have to wait until March for more followup.  Keep in mind that neurological time moves slowly.  March will be here before you know it.

be well,
Lulu

[Sparkysarah]

Hi Susan

Sounds like you have some results but nothing conclusive and as you say you are going to have to wait patiently till March. It is so hard waiting when "possible" diagnoses are mentioned and in some ways this can feel quite scary. Just hold on to what you know rather than imagining the worst. It sounds as if your neuro is being thorough and trying to eliminate other conditions so I hope that you will not have to wait to long to get some answers.

Cheers for now

Sarah :)