Aa
In need of hugs and prayers
Its been an awful day to say the least.
Some have ask will I ever get a break.I quess I can answer that NO!!!!
After crying all afternoon,I finally gained my composure for my kids.
Had my follow up with my neuro,who I must say has a very caring and compassionate side,many neuro's can learn from him.
Test results are back---VEP left eye 147 , right eye 130, bilateral optical neuritis,never showed on recent MRI;s.Neuro was puzzled for sure.But admitted MRI's don't detect all.
The BAER-- slightly abnormal left ear with mild sensural hearing loss right ear and moderate hearing loss left ear.Recommends hearing aids.
Now for the real shocker,I knew my neuro had suspected arachnoiditis,well its there.But the real kicker is he told me the arachnoiditis is caused by a pin hole tear in the spinal canal leacking spinal fluid into the thecal sac.Which has done a great job containing it.He thinks it was caused when I was rear ended in June causing the screws in my back to shift and hit the spinal canal.The only way to repair this is to surgically do it.
I completely lost it,I told him no,I would't go through that again and he explained that it had to be done,if that ruptures theres severe medical consequense.He's already been in touch with my neurosurgeon,I had blood work done today,basic panel and he was checking my clotting factor.
I have to be back in his office tomorrow morning 7:30 for a EMG/NCS and friday ,I have to be at the hospital for a spinal tap he's gonna run a MS panal and to make sure theres not an infection in the spinal fluid.He admitted that he wasn't comfortable doing it,it has to be done at the L2-L3 usually done lower.He wants it done at the hospital under florascopic with me sedated.YEA!!!Thats a plus.
He was very caring, as I sat there and cried like a fool,I told him of my fears and he promised me he would see me through the surgery and he would be assisting my neurosurgeon.he said my concerns were very valid and he would controll all aspects of the pain.I told him in the past that my surgeons dismissed the pain after the surgeries and I refuse to go through that again.
He ask me if I had faith in him and my surgeon and I said yes.Usually ya don't get to see this side of a DR.The human side. He hugged me ,made sure I had a driver ,ask if I needed anything for depression or to get through the news,I told him no,but I also told him not to wear a tie tomorrow during the EMG/NCS ,he ask why and I told him I'd choke him with it if he inflicked any pain on me during that test.I told him that would get me through the night.
He said I was stuck with him,with the MS and many Drs are not familiar with arachnoiditis,an incurable nerve disease.But it can be controlled with solu-medrol when it flairs up.He said now its trying to learn what is what during a flair up.
Its been a lot to absorb,thought I was done with test.
Its been a long year,but I'm sure 2008 will be better,I now know what I'm facing.It may be a long journey yet,but that soon will pass.
Sorry to ramble
T
Some have ask will I ever get a break.I quess I can answer that NO!!!!
After crying all afternoon,I finally gained my composure for my kids.
Had my follow up with my neuro,who I must say has a very caring and compassionate side,many neuro's can learn from him.
Test results are back---VEP left eye 147 , right eye 130, bilateral optical neuritis,never showed on recent MRI;s.Neuro was puzzled for sure.But admitted MRI's don't detect all.
The BAER-- slightly abnormal left ear with mild sensural hearing loss right ear and moderate hearing loss left ear.Recommends hearing aids.
Now for the real shocker,I knew my neuro had suspected arachnoiditis,well its there.But the real kicker is he told me the arachnoiditis is caused by a pin hole tear in the spinal canal leacking spinal fluid into the thecal sac.Which has done a great job containing it.He thinks it was caused when I was rear ended in June causing the screws in my back to shift and hit the spinal canal.The only way to repair this is to surgically do it.
I completely lost it,I told him no,I would't go through that again and he explained that it had to be done,if that ruptures theres severe medical consequense.He's already been in touch with my neurosurgeon,I had blood work done today,basic panel and he was checking my clotting factor.
I have to be back in his office tomorrow morning 7:30 for a EMG/NCS and friday ,I have to be at the hospital for a spinal tap he's gonna run a MS panal and to make sure theres not an infection in the spinal fluid.He admitted that he wasn't comfortable doing it,it has to be done at the L2-L3 usually done lower.He wants it done at the hospital under florascopic with me sedated.YEA!!!Thats a plus.
He was very caring, as I sat there and cried like a fool,I told him of my fears and he promised me he would see me through the surgery and he would be assisting my neurosurgeon.he said my concerns were very valid and he would controll all aspects of the pain.I told him in the past that my surgeons dismissed the pain after the surgeries and I refuse to go through that again.
He ask me if I had faith in him and my surgeon and I said yes.Usually ya don't get to see this side of a DR.The human side. He hugged me ,made sure I had a driver ,ask if I needed anything for depression or to get through the news,I told him no,but I also told him not to wear a tie tomorrow during the EMG/NCS ,he ask why and I told him I'd choke him with it if he inflicked any pain on me during that test.I told him that would get me through the night.
He said I was stuck with him,with the MS and many Drs are not familiar with arachnoiditis,an incurable nerve disease.But it can be controlled with solu-medrol when it flairs up.He said now its trying to learn what is what during a flair up.
Its been a lot to absorb,thought I was done with test.
Its been a long year,but I'm sure 2008 will be better,I now know what I'm facing.It may be a long journey yet,but that soon will pass.
Sorry to ramble
T
I am so sorry for all that you are going through, you will be in my thoughts and prayers. Life can be very hard at times but atleast we have these forums to talk to those who are going through the same things as us. My god be with you and and help ease the shock of all you are going through in your life.
Mooers777
Mooers777
Hi, T. Yeah, maybe a train that gives us a ride would be better, since we're not walkin' all that well. :)
Every night, I ask the Lord to guide our doctors in dx'ing us and treating us.
No, I'm not doing any better. Just waiting to hear from Clevelands scheduling dept. for the new tests Dr. K wants. She said they're pretty busy but I am still hoping they'll have some slots before Christmas.
My D.O. prescribed 50 mg. of Tramadol (generic Ultram) last week for the pain, and whoa baby, if I take more than one, I end up with a killer headache, so bad that the base of my skull is throbbing and my eye sockets ache. I am supposed to be able to take 4 a day...but more than one and I'm so sick. He also prescribed Valium and I get the same reaction, so I am wondering if they could be interacting with the pred left in my system.
I had my eye exam yesterday, and the only thing the doc saw is that one of my eyes goes out a bit, and I have the earliest beginnings of cataracts, but she said it could be the solumedrol and pred. made them look worse. She said if Dr. K wants to talk to her, she'll gladly talk to her. My vision has only worsened a very slight bit, so that's good news.
If these next tests don't show anything, I am back in Limboland.
Still, like you, I intend to enjoy the upcoming holidays...you're right, being with family & friends helps.
I hope your friend will realize that suicide is not the answer.....you're an angel to take the time to reassure her, with all you are going through...I understand why she is thinking it...but I can't help but believe there is a reason we are each going through these medical problems...just don't know what it is yet.
Right now, you are at the top of my prayer list.
Hugs,
Sheila
Every night, I ask the Lord to guide our doctors in dx'ing us and treating us.
No, I'm not doing any better. Just waiting to hear from Clevelands scheduling dept. for the new tests Dr. K wants. She said they're pretty busy but I am still hoping they'll have some slots before Christmas.
My D.O. prescribed 50 mg. of Tramadol (generic Ultram) last week for the pain, and whoa baby, if I take more than one, I end up with a killer headache, so bad that the base of my skull is throbbing and my eye sockets ache. I am supposed to be able to take 4 a day...but more than one and I'm so sick. He also prescribed Valium and I get the same reaction, so I am wondering if they could be interacting with the pred left in my system.
I had my eye exam yesterday, and the only thing the doc saw is that one of my eyes goes out a bit, and I have the earliest beginnings of cataracts, but she said it could be the solumedrol and pred. made them look worse. She said if Dr. K wants to talk to her, she'll gladly talk to her. My vision has only worsened a very slight bit, so that's good news.
If these next tests don't show anything, I am back in Limboland.
Still, like you, I intend to enjoy the upcoming holidays...you're right, being with family & friends helps.
I hope your friend will realize that suicide is not the answer.....you're an angel to take the time to reassure her, with all you are going through...I understand why she is thinking it...but I can't help but believe there is a reason we are each going through these medical problems...just don't know what it is yet.
Right now, you are at the top of my prayer list.
Hugs,
Sheila
You rock my world :-)
Mel (hugs)
Mel (hugs)
you have to be be feeling pretty grateful right now to have such a wonderful doc. who actually care's for you. My thoughts are with you.
april
april
Wow, what a lot to absorb. You will be in my thoughts and prayers. May you continue to have the strength to deal with what comes your way. You are a person of grace and spirt, and I'm so honored to have you and everyone else here to "talk with".
I am so sorry i was so late to send you my thoughts and prayers..please forgive me... i have not been feeling very well and haven't been checking the posts since the surgery but today i just wanted to check in... and just read your post... i know you have been through so much and now all of this...
it is awful to be hit with so much at one time... i do understand but i also know you are a very strong individual and such a support to so many of us... YOU will get through this... YOU will continue to be strong and feel the love, support and encouragement from your family and friends... WE are here for you... I am here for you... just as you were for me and many others... I know it is alot to absorb but you will get through this... feel the LOVE and HUGS and especially the PRAYERS.
Love and God bless,
Frann
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