I posted here a couple of months ago and never really posted an intro!
I was diagnosed with MS in Sept. 2006, I was put on Betaseron for a while, but had to discontinue because I never got over the flu like symptoms. I was then put on Copaxone which I did well on, but then stopped taking on my accord. My LP came back negative, but my MRI shows lesions in my cerebellum and brain stem.
At first I got a definite MS diagnosis, since then it has gone down from MS, to probable MS, to the neuro actually saying "I dont know what is wrong with you" I have had 2 MRI 2 years apart and they have shown no change.
My symptoms are headaches, muscle stiffness, facial numbness and pain, poor balance, neck pain, pain that goes down my spine when I bend my head down. vertigo, extreme fatigue and left arm weakness. My legs also feel like they have weights attached to them and I am pretty much useless in hot weather.
My last neuro visit was a month ago, I went due to 3 back to back migraines, increasing vertigo and weakness. My neuro was in a hurry and he seemed frustrated that I would waste his time. He perscriped 400mgs of Rivoflavin and curtly told me "Well, I dont know what is wrong with you, your MRI shows abnormalities". He told me to comeback in January.
Something tells me that, I shouldve stuck with the Copaxone, I was doing fine for 2 years and then this summer I got "b**** slapped" once again by these symptoms. I partially blame myself for this merry go round.
I have an HMO, there is only one other Neuro in the group. I am at the point where I dont mind shelling out $300 to see an MS specialist at UCLA, to finally rule this out.
I am scheduled for a physical in December and a whole bunch of blood tests were ordered, including thyroid. I would love a definite answer someday!