Sorry to hear of the dx but glad you finally know. My dx was 2 weeks ago. I started Avonex last week. My second injection will be tomorrow evening. I am STILL trying to digest all of this in my mind. I still feel like it really did NOT happen.
Or am in denial I suppose. The worst part for me is knowing how this affects those around me. I have always been the one taking care of my husband and 7 children....so now that I have this DX I am very concerned about what will happen. Especially since my legs and vision are most affected.
But.....we just do what we have to in order to get through and deal with it. Did your doctor give you a choice of what med to take? Mine really didn't.
I'm so very sorry for you. What a lot to get your mind around. Even though this is what you've been expecting. Of course you're feeling the way you do. Such a devastating blow.
I am touched to read how compassionate your doctor seemed. I'm glad he was there for you. And, that he's going to take care of you, and immediately. Wonderful! He sounds terrific. Just what you need.
We're here, too. It will take time for all this to sink in, I'm sure. We'll still be here!
I am really sorry to read that you have had a positive diagnosis of MS but I am happy for you that you are out of limboland.
You will no doubt go through a myriad of emotions in the next few weeks but remember that for those times when you can't handle it we are here.
It appears that you have a wonderful caring doctor and I certainly hope that your good care continues. I want to wish you the best of luck in the next part of your journey with MS and plese remember that we are here for you!
Lots of Hugs,
SORRY TO HEAR ABOUT THE DIAGNOSIS,BUT YOU HAVE LEFT THE REALM OF THE UNKNOWN AND THE UNKNOWN IS WORSE THAN HEARING THE WORDS MS.
YOU HAVE AN AWESOME NEURO WHO HAS RECONIZED THAT NOT EVERYTHING SHOWS ON THE MRI'S.
5% OF MSERS ARE LESION FREE AT SOME POINT.
IT HAD TO BE EMOTIONAL,EVEN THOUGH WE KNOW WHAT THEY ARE LOOKING FOR THAT FINAL DX,STILL IS A SHOCKER.
MS IS LIVEABLE AND WE HAVE OUR GOOD DAYS AND BAD DAYS.
REBIF IS WHAT I'M ON,I TAKE IT AT NIGHT BEFORE I GO TO BED,WITH TYLENOL AN HOUR BEFORE HAND,THAT WAY ANY SIDE EFFECTS I SLEEP THROUGH.
I WAS VERY FORTUNATE THAT I DIDN'T HAVE ANY SIDE EFFECTS FROM IT LIKE THE FLU-LIKE SYMPTOMS AND SO FORTH.
WITH REBIF IT COMES WITH AN AUTO-INJECTOR YOU DON'T EVEN SEE THE NEEDLE.IT JUST GOES UNDER THE SKIN.I DO MY SHOTS ON TUESDAY,THURSDAY AND SUNDAY,THAT WAY I HAVE THE WEEKENDS OFF.
PLEASE CHECK WITH YOUR INSURANCE AND THERES MANY PHARMACUTICAL COMPANIES THAT WORK WITH US TO GET OUR MEDS.
TRY TO FOCUS ON THE POSITIVE THINGS IN LIFE AND REMEMBER THAT MANY GO INTO REMISSION
I'm sorry to hear about your dx, but like everyone else has said, I imagine knowing is a lot better than not. At least you can be proactive now, start meds, and get relief from some symptoms (through other meds).
Another story of a doctor willing to diagnose even while they don't have any "proof" gives me confidence that, whatever my issue is (I'm undiagnosed), someone will eventually hear me.
Thanks for the inspiration.
Sweetheart...I guess today was one of those day's that I needed a good cry. I cried like a baby when I read your post. Rita, I am SO SORRY that this is MS. I know that it's a relief that you finally have an answer, but I know from experience how this news will effect your life, so I weep for you and with you.
Rita, if I was with you right now, you and I could have a good cry together. I would hold you like a mother holds her child and offer you a soft shoulder to lean on. I am so touched by your story and admire you SO much for the way you say you will carry on, despite the diagnosis.
Rita, there will be times that you will grieve and grieve deeply and openly. Don't stop those feelings. Let them come out, so you can deal with them. You may find that you weep at the most odd times and in the weirdest places, so if you do...just excuse yourself and go to the lady's room and let it all out. Find a close friend near you that can offer you some good 'listening' ears. You need to talk out your feelings.
I take great comfort in your strength and your resolve to fight this dam (n) disease, Rita. I wish there was something I could do for you, to let you know that you have a friend that DOES care and will help you in any way. That "friend" comes in the form of this Forum and all those who care so deeply for you here.
Every step you take Ria, we take with you. We are here for you, day or night. If you would allow me...I would like to send some prayers up to the Heavens, for you and your family.
This indeed isn't the greatest news, but at least this is a disease that you can fight. One day, WE WILL ALL WIN our fight against this disease and we WILL get together, all in one room, even if this lady has to mortgage her house for plane tickets; for each and everyone of you to be present, to celebrate our victory. I trust that a cure and a reversal of the damage will be in our lifetimes. I hang onto to that thought, for courage to face another day.
God love you sweetheart and much love to your family.