Aa
It's been awhile!!!
Hey guys how's everything going...I've been doing a little better dealing with this whole ms situation. I ended up going to a 2nd Nuro that specialize in Ms and she said I had CIS clinically isolated syndrome which is a step lower than ms. I start on copaxone this week and I'm kinda worried about the shot. Any advice guys? My left hand is starting to come back with my cordnation and the numbness is starting to fade away little by little.. Another thing I'm worried about now is night sweats. It might just be my blanket cause this the first time. Sorry it's been awhile our baseball session just got started and I've been sooooo busy. Thinking about y'all guys !!!!
Hi Matt, good on you for seeing the second doc. Just make sure you get your Vit D levels checked & you are at the highest level possible. You can see another thread on this subject today.
I used to be on injections for a lot of my life. As everyone else has said before me "it does get easier" & the first one is the hardest. I used to practice on an orange at first to get the feel of things. :-) I'm thinking you will probably using an autoinjector though. The nurse will show you & guide you through this process.
I have found steroids also mess you about a bit so that might also cause the night sweats....particularly if your tapering off them. I hope this all settles down soon for you.
Take care,
Karry.
I used to be on injections for a lot of my life. As everyone else has said before me "it does get easier" & the first one is the hardest. I used to practice on an orange at first to get the feel of things. :-) I'm thinking you will probably using an autoinjector though. The nurse will show you & guide you through this process.
I have found steroids also mess you about a bit so that might also cause the night sweats....particularly if your tapering off them. I hope this all settles down soon for you.
Take care,
Karry.
I was thinking the same thing, Kyle. If it happens more than once, how can it be "isolated"?
mattflo, nice to hear from you and great that you have a treatment plan in place. Alex is right, the first shot is the hardest. It gets easier and easier to the point that it will be as routine as brushing your teeth. The medicine might sting at first, but that subsides as your body adjusts to it. The needle itself you should barely feel, it's so thin and small.
Good to hear that your normal function is returning to your hand. Hopefully on Copaxone you'll manage to stave off the next attack for a long time, maybe forever, you never know. :)
mattflo, nice to hear from you and great that you have a treatment plan in place. Alex is right, the first shot is the hardest. It gets easier and easier to the point that it will be as routine as brushing your teeth. The medicine might sting at first, but that subsides as your body adjusts to it. The needle itself you should barely feel, it's so thin and small.
Good to hear that your normal function is returning to your hand. Hopefully on Copaxone you'll manage to stave off the next attack for a long time, maybe forever, you never know. :)
1 CIS Incident + 1 CIS Incident = MS :-)
How could the second CIS be CIS? Aren't Doctors wonderful :-)
Kyle
How could the second CIS be CIS? Aren't Doctors wonderful :-)
Kyle
My MRI and my CIS were what confirmed my MS. My neuro accepted my CIS, which previous neuro's ignored. I had 2 CIS incidents.
At least they are calling it CIS and starting treatment. The Copaxone shots are not so bad with the autoinjector.The needle is small. The real nervous part about the shots for me was psychological. They made this thing real, like having diabetes.
The trick with the autoinjector is the depth gauge for each injection. No one can tell you what depths work for you. At first I kept on the same depth then I started adjusting for different parts of the body. Be sure you check the depth before shooting. It sometimes gets moved. Mine did and it went way in.You just have to try it and see. For me I have muscular arms so I had to make sure on my arms I did not go to deep and hit a nerve. Make sure you stay at the back of the arm where they show you. I hit the Ulna nerve at it was like hitting your funny bone.
The nurse will show you. She has you do your first shot while she is there. The first one was the hardest. I was shaking because it is all new and like I said it makes it real. I did mine while watching TV so I was distracted. For me they stung but I would think about something else.
Now getting shots is easy for me. You can also try with out the injector if you want. The drawback of the injector is it like a staple gun it is forceful. The good part is you do not really have to look at the needle. My husband gave me the shots in places it is harder to reach towards the back. It made him feel good to help.
Good luck.
Alex
The trick with the autoinjector is the depth gauge for each injection. No one can tell you what depths work for you. At first I kept on the same depth then I started adjusting for different parts of the body. Be sure you check the depth before shooting. It sometimes gets moved. Mine did and it went way in.You just have to try it and see. For me I have muscular arms so I had to make sure on my arms I did not go to deep and hit a nerve. Make sure you stay at the back of the arm where they show you. I hit the Ulna nerve at it was like hitting your funny bone.
The nurse will show you. She has you do your first shot while she is there. The first one was the hardest. I was shaking because it is all new and like I said it makes it real. I did mine while watching TV so I was distracted. For me they stung but I would think about something else.
Now getting shots is easy for me. You can also try with out the injector if you want. The drawback of the injector is it like a staple gun it is forceful. The good part is you do not really have to look at the needle. My husband gave me the shots in places it is harder to reach towards the back. It made him feel good to help.
Good luck.
Alex
Hi Matt - I'm glad you're starting to chart a course forward!
CIS is more a step before MS, rather than a step below. CIS is, to put it imprecisely, the first appearance of MS. There is no MRI, clinical or other evidence that a prior attack has occurred.
If the symptoms never return then the CIS diagnosis stands. If new, or similar, symptoms develop the CIS graduates to MS. Many docs are not willing to treat CIS with disease modifying drugs typically aimed at MS. They prefer to wait for the second relapse. That your doc is starting you on Copaxone is great! If you can avoid a second attack why wouldn't you?
Keep us posted.
Kyle
CIS is more a step before MS, rather than a step below. CIS is, to put it imprecisely, the first appearance of MS. There is no MRI, clinical or other evidence that a prior attack has occurred.
If the symptoms never return then the CIS diagnosis stands. If new, or similar, symptoms develop the CIS graduates to MS. Many docs are not willing to treat CIS with disease modifying drugs typically aimed at MS. They prefer to wait for the second relapse. That your doc is starting you on Copaxone is great! If you can avoid a second attack why wouldn't you?
Keep us posted.
Kyle
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