I saw the MS neurologist, neuropsychologist, and nurse practitioner today. There is an entry in my journal with the prior stuff.
No new or enhancing lesions anywhere. The few punctate ones on my 3T brain MRI don't show on the 1.5T one taken with MS protocol, and the neuroradiologist doesn't mention any. I still have the two in my cervical spine. Nothing interesting in my thoracic. The nurse practitioner went over both sets and showed me what the neurologist and radiologist had been talking about.
My SSER is normal. The scars in my spine aren't bad enough to affect it. My bloodwork for inflammation and neuromyelitis optica is normal.
There is no explanation for my eye problem. I have a scotoma (small) that's always present, and sometimes I see ghost images of things when I look from one place to another. My retina is just dandy. I'm to keep track of the "bad eye days" to see if there is a pattern. Maybe it really is a migraine, just like they told me 9 years ago.
My extreme fatigue is being chalked up to the sleep apnea, which I hope the CPAP will fix. It will also cure my high blood pressure, impaired fasting glucose, obesity, nighttime urinary frequency, wrinkles, zits, dull hair and yellow teeth, and give me the ability to tap dance and play the piano.
The paresthesias, and my urge incontinence and constipation are being attributed to the damage in my c-spine, which is permanent. Good thing the symptoms are slight.
He had me do the backwards tandem walk with eyes shut, and I can actually do a few steps. Gets better with practice.
I did the MSFC (25-foot walk, 9-hole peg test, paced 3-second serial addition) for a baseline with the neuropsychologist, and all was good.
I'm to go for a follow up visit to the psychologist and the nurse practitioner in January. Meanwhile, now that I have been told by an actual MS specialist, following a truly thorough exam, that I don't have it, I'm going to believe it. I'm counting on the CPAP to improve my energy, and since my hubby has now been told that he's also prediabetic, we're not going to have bad things around the house any more. We're probably getting bikes, too.
Side note--cool sign on the window at the MS specialist's office:
"Brains are soft. Helmets are hard. Use both."
So, that's my good news. Now I get to amuse myself for a few hours before going waaaaaay back across town to his office for my CPAP sleep study.
Happy Halloween, everybody.