I've been dumped!!!

[shermay]

I can't believe it!!  Because I wouldn't take my Neuros advice he has asked me to find another Neuro, as he believes that Tysabri is the best way forward.  He says that I am on a suicide mission, and he doesn't want anything more to do with me!! The Frenchmen look at women as second class, we have no right to state our case.  He has said what he wants me to do, and because I have said that I wanted to wait and try another DMD before Tysabri - he's dumped me.

Even my regular Doc. said that he wouldn't give Tysabri to his own Wife - go figure!!!!!!!

This is all I need at this moment in time.  Yesterday we buried our last Westie.  It was terrible.  We couldn't find a vet to come out on call over the weekend and put her to sleep, so I gave her some oral morphine for the pain, and hypnotic sleeping tablests.  She was in pain you could tell, but the morphine did the job, and she passed away peacefully:(

How much more stress can I take?  GB out in March, Uncle dying in April, My Father in May, another of my dogs at the end of May and now this - no wonder I am in such a mess.

I just spoke with my regular doc, and he said because I wasn't obedient that's why he wants me to change neuros.  OK we have a good health system here, but it's like living in a third world country, with women having no say with what they want!!!!

Sorry to rant on, I'm just so upset.

Debs

[Ufrustrated2]

Fantastic!

now you can go find a neuro that is worth the betterment of your health & time!!

[GOMER2]

Sad to say this happens all TOO OFTEN to too many people.

I have dumped a nephrologist AND neurologist just last month. The neph I jsut dumped REFUSED to listen to me, I also hit my new lowest kidney function in 2 years. At least she did better than my first neph, for a while. The neuro I dumped, he said I do ahve muscle atrophy among many other MS Sx, hoever he said he did not think all those multiple bilateral deep white matter lesions were MS and even if they were he would not treat it anyway.

Back up 3 decades: I had a sore throat and saw my fam doc. I next had pleurasey (Dx & Tx at ER) but still was not feeling well at all. My famdoc REFUSED to see me for follow-up, saying I JUST had a sore throat.  My boss at worked asked me if I would see a doc if they sent me, I said yes When I went, the co doc gave me a clean bill of healt and back to work in time for lunch. That evening after a few sips of coke it was a meat-wagon ride to ER and admitted to the hospital When the Co doc saw me in the hospital, he gave me #311 for blood sugar being so high. At that point I still did not know what diabetes even was, leat alone know I eas diabetic.....

I am still in limbo land on the MS thing, even with a documented 50 year history of symptoms no less.....go figure?

Hang in there.

GOMER .

[Karen99]

That is truly awful of your neurologist.  You made your decision and have every right to decline.  You are not on a "suicide mission" and he should be ashamed of himself for saying such a thing.  It would scare the pants off me to take Tysabri and would take a chemo drug before Tysabri.  I don't like the statistics.  Others decide on taking the risk, and they are correct in their decision, for themselves.

It is just as well because there may be other issues that come up that you won't see eye-to-eye with this neanderthal.   The last thing you need is a difficult doctor.  I am often a noncompliant patient and my doctors put up with me.  It is part of their job.  In time they may persuade me, but not always.  He did you a favor.  You will come to appreciate this fact in time.  

Sorry about the loss of so many close to you.   We don't make up the rules, or in how things occur, we just have to cope with it as best we can.

Take good care.

[shermay]

Thank you all so much for your kind words.  I can't express enough how much all of your comments have made to me.  When I received the email (last night now) I was straight onto the phone with my Doc., and he said that -  like I said - because I wasn't 'obedient' thats the reason.  I have already made an appoint. to and see him, and discuss choosing another Neuro.  

I had a terrible nights sleep last night, I was so angry, but you my friends are helping me through this.  I WANT to take a DMD (again) but not Tysabri, whats the matter with the French, are they dumb or what!!  I even spoke with my old Neuro in the UK who is now retired and he agreed with me, his exact words to me were 'Mrs Davies NO MEANS NO in any language - but you should be given the opportunity to choose another DMD and not be written off'

Ego, I agree has an awful lot to do with it.

Once again thank you my friends,

Debs

[Udkas]

Words are hard to find, but what an *rse hole!  That's the best I can think, I hope it doesn't offend anyone but boy, oh boy you don't need this type of treatment right now but hey you are better off without someone like that!

It is your choice, you are in charge of your own body and what you choose to put into it.  I bet the pregnant woman years ago that had thalmidilyite babies (sorry for spelling) wish that they had refused the drugs on offer. It is and will always remain your choice and when the drug is one that has received some bad press etc. he should be more considerate...and support your decision, it's not like you are refusing treatment altogether.

My thoughts, love, hugs are with you.
Cheers,
Udkas.

[PastorDan]

I have three former neuros I can scratch off your list before you even ask.  I hope that helps to narrow your search.  Seriously, it's ego with some, but with my last one it seemed even to turn into a test of wills.

I am sorry that you've had such uncaring treatment, and will pray that you find the right doc right away.  Enough is enough, in any country.

[supermum_ms]

I'm a little gob smacked, i just cant believe your neuro's attitude. On the other hand i think he might of done you a favour, if thats how he's going to behave your better off under someone elses care. Find someone who has a good reputation, patient referals are best because they have a first hand experience of who is good and who needs a kick up the backside.

How frustrating, i really want to know if they teach arrogance at med school, i'm sure some think they can walk on water!

So sorry about your heartache, the passing of a loved one is never easy, my thoughts are with you.

Hugs.......JJ  

[Bob368]

I'm sorry to hear about everything thats going on in your life. It will get better, life has a way of doing that, for one reason or another. Don't worry about your neurologist, your going to find out it's a good thing, that your doctor-patient ties have been severed. If your neuro will not work with you, it's time to move on. There are plenty more out, i'm sure you will find a better one.

Always here,

Bob :)

[ShadowsSister]

I am sorry and relieved at the same time. I didn't like this man to began with because he wasn't talking to you but demanding you only did as he wanted, rather it was right for you or not. Your real Doctor who knows you The Person and Woman knew this wasn't the drug for you.

Debi you Did Make The RIGHT decision for you and that is what matters here. You have every right to feel the way you feel. I wanted you to firer Him but he didn't give you that chance either.. What a Bugger he is. I think that's how you say that? Am I right.? Anyway I know you know what I mean. GOOD Riddance, that are much better Doctors than he Has Proven himself to be. I for one am relieved that he is no longer in charge of your care.

Sweetie, I am so sorry you have suffered another loss. I know there are times when we just feel enough IS ENOUGH... but some how we get through it and come out the other side. I know at this point you aren't feeling how strong you are, but I Know How very strong you happen to be, even if you can't feel it right now. It's there.

I wish I lived closer, but for now this is the best we have. Just know that I am here for you and for now you need to lean on those of us who love & care about you so much. I know that William is there for you and your "Little Man" Etienne too. Plus your MedHelp family... We are all here for you, so don't think you need to go through all of this alone...because you Don't OK... let us support you and be there for you.. Please

I am sending you many hugs from the other side of the pond, and you know my hugs are strong enough to reach you..They carry my thoughts and Love with them...

I also know you are taking care of yourself, because you don't know how to do otherwise.

Much Love and Loads of Hugs and Daily Prayers... DJ

[saveone]

Alex has it right have a good cry and find another neuro.  I don't think I would be will to chance the Tysarbi exhausting the other options.  Remember it is your body your brain, your choice.

Sorry about all of the other stuff.  Sometimes it just seems to be more than one can take.

terry

[HVAC]

I had a Neurologist fire me because I wanted to be tested for MS and not be treated for migraine. She did me a big favor since it turns out I have MS.

Sorry about your dog and all the other stuff. You have had it rough.

Have a good cry and find another Neurologist.

Alex

[Lulu54]

I have met other MS patients who have been dumped by their neuros because they didn't want to follow the doctor's advice.  I believe their thinking is - *how can I help you if you won't listen to me? So why waste my time*

But in your case this is so different.  Because you weren't refusing treatment, you just were not willing to start immediately on tysabri.  And all of this is entirely too new for you - this shows no compassion at all.

I'm afraid he beat you to the punch with the breakup, because obviously you were going to have to kick him to the curb with the rubbish.  

still shaking my head,
L

[Wobbly]

that's horrible.. I wish you could contact some medical system that you could report such actions...

I hope you find a Neuro that will listen and help you..do they have any female Dr in your area by chance... Contact someone...can't your GP help out with this??

wow...amazed this can happen like that..

take care and let us know how things go..
wobbly
dx

[Lulu54]

Outrageous - no matter what language we want to use.  I'm so sorry that this French jerk has added to your difficulties. His ego is so out of line with what would be good for a patient, you are better off looking for someone else.

Have you asked your GP for the referral to a compassionate neurologist?  No one should be forced onto Tysabri against their wishes.

This is enough for you and your family to endure.  I am so sorry that your losses continue.

lots of love,
L

[Fluffysmom]

I'm so sorry for all you're going through.  I have every confidence that you'll survive it all and come out the strong and positive woman you've shown yourself to be.  In the meantime, my heart aches for you for all the losses you've had to experience.

My last two neurologist's dismissed me, and they were women.  The first one said I needed no further neurological workup after my LP was negative, despite my symptoms and brain lesions, and my last one because I'd spoken up and questioned her; she said I didn't trust her opinion.

I think that a lot of neuro's have large egos, or something like that.  I hope your next neuro is compassionate, understanding, and will work with your choices.

You just rant all you want, and know that we care and wish you better days.

Take care.

Kathy

[rendean]

I'm so sorry to hear of all the misery and sadness you are having to endure. My condolences on all of your losses.

As for your neuro, you're better off without him. My opinion is that Tysabri should be a last choice option due to the potential side effects. I don't know the specifics of your disease but if it were me I would want the opportunity to try another DMD before Tysabri as well.

It doesn't matter where you are, you should still have options and a voice in your treatment plan. I'm sorry that you have to face the hunt for a new neuro after all you've been through but perhaps it is for the best even if the timing is not good.

Sending lots of hugs and warm thoughts your way!

Ren