Could this be MS

[kekdahl]

I have Ehlers-Danlos Syndrome(tennisenX) and am now showing the early signs of MS. I was found to have to frontal lobe lesions have and have one limb that is ice cold alternating, numbness, periodic numbness of limb and am now showing symptoms of possible retina detachment. I have several treating doctors. Two are concerned that i now have MS in addition to while another tells me not to worry.
I have intermittent balance problems, periodically lose control of a leg or arm. Is it possible that this is just EDS or do I really need to have an MS screening?
Any doctor with experience in this area(s) or individuals who have similar experiences?
I am quite confused.
thank you

[nncdalton]

Unlike classic EDS patients, they did not have atrophic scarring or poor wound healing. Significant medical problems occurring in these individuals included severe diverticular intestinal disease with ruptured diverticula, pancolonic diverticulitis, and rectal prolapse, mitral valve prolapse requiring valve replacement, and obstructive airway disease. One patient had 3 daughters, presumed heterozygotes, who had minimal clinical expression of a tenascin-X deficiency phenotype and did not meet the diagnostic criteria for EDS.


This is all that I have been able to find as far as the expressed symtoms. There does seem to be a crossover in some of the cases that I did read where some symptoms did show "signs of possible MS" but I am simply not smart enough for all of this. I do wish you the best in your diagnosis. There is a member who you might want to contact in the group that is really good at all of this medical jargon. Her contact is  Quixotic1 and she seems to just know what a lot of us are going through. I will be thinking about you. Contact me anytime.

[sllowe]

Hi Kekdahl, welcome!

I really don't know anything about tennisenX, and I'm sory for what you are going through.  I'm glad you found your way to us though, and sorry your post slipped to the 2nd page.  You'll find we are here for you no matter what.  

Are you in the beginning stages of getting a workup for MS? Are you worried about it? The testing is definitely necessary.  And, if it were me, I'd go ahead and go through with it.  Most of them are non-invasive except for the spinal tap, and even those are bearable for the most part.

It will be very important for your future to find out if this is MS or not.  Early treatment with the DMDs (disease modifying drugs) is very important.  

Again, welcome and thanks for coming our way.  While you wait for more to chime in, please visit our health pages. They are located up toward the right corner of the page and jammed w/information about the diagnosis, MRIs, etc.

Hope to see you back soon,
Shelly