Aa
Let's talk Tingles
Background: I was dx in Oct of this year. Brain MRI showed non-specific lesions, T-Spine showed very specific, non-active lesions. Pre-dx, I had Optic Neuritis, and reported some history of numbness in my arm which I always attributed to typing. (who knew?)
After dx, I did have an onset of tingles/pins and needles in November. My proactive MS neuro actually ordered another MRI (thoracic and c-spine) even though I just had one in Oct. She was looking for new lesions, and did not find any. She is giving me steroid IV-infusions 1/month for 6 months until the Copaxone ramps up. After the first infusion 3 weeks ago, the tingles got a lot better. They are starting to come back .. my next infusion is next week.
Question #1:
I am wondering if anyone has determined the significance of tingles that come and go throughout the day. When I first called the doc about the tingles, the nurse went into a long dialogue about consistent vs intermittent symptoms. She kind of lost me .. and I didn't bother to ask more because I was going to see the doc anyway (who I like better).
Question #2:
Aside from random tingles throughout my day (which come and go through my arms, hands, and legs), I often wake up at night with significant tingles and numbness in my arms, depending on what side I was laying on. Previously, I would attribute that to pinching a nerve in my sleep ... so I wonder, can it be that simple? Or, can MS make a normal night-time pinch even worse?
Question #3:
I often get "cold" feeling in my arms and finger tips at work. Again, attributed to typing since they concentrate on my right side. Now I wonder (and will mention to my neuro) .. the very tip of my forefinger often feels "fat" .. like the joint is stiff and the tip is numb .. it's a very isolated feeling .. specific to that fingertip. Can an MS symptom be that isolated to just a small spot? Or have I been typing too much?? (Lol from the length of this post, I may be making my own case!)
Other, side notes:
- I am stiff every time I get up (in the morning, after sitting at my desk, etc) .. I posted a reply to someone else's question about this today so I will not elaborate here.
- I am not confident my vision is 100%. Since the ON in Sept, I just feel like there are blurry spots. I don't notice them at home so much .. but I have 2 computer monitors on my desk at work, and see them when I look at the computer.
FYI:
I've trolled the other forums (such as MSWorld) and keep coming back to this community. It may not have the organization to have boards by drug, symptom, etc .. but it has a wonderful network of supportive people with a consistent message. That's a "thank you", btw.
~~ Lori
After dx, I did have an onset of tingles/pins and needles in November. My proactive MS neuro actually ordered another MRI (thoracic and c-spine) even though I just had one in Oct. She was looking for new lesions, and did not find any. She is giving me steroid IV-infusions 1/month for 6 months until the Copaxone ramps up. After the first infusion 3 weeks ago, the tingles got a lot better. They are starting to come back .. my next infusion is next week.
Question #1:
I am wondering if anyone has determined the significance of tingles that come and go throughout the day. When I first called the doc about the tingles, the nurse went into a long dialogue about consistent vs intermittent symptoms. She kind of lost me .. and I didn't bother to ask more because I was going to see the doc anyway (who I like better).
Question #2:
Aside from random tingles throughout my day (which come and go through my arms, hands, and legs), I often wake up at night with significant tingles and numbness in my arms, depending on what side I was laying on. Previously, I would attribute that to pinching a nerve in my sleep ... so I wonder, can it be that simple? Or, can MS make a normal night-time pinch even worse?
Question #3:
I often get "cold" feeling in my arms and finger tips at work. Again, attributed to typing since they concentrate on my right side. Now I wonder (and will mention to my neuro) .. the very tip of my forefinger often feels "fat" .. like the joint is stiff and the tip is numb .. it's a very isolated feeling .. specific to that fingertip. Can an MS symptom be that isolated to just a small spot? Or have I been typing too much?? (Lol from the length of this post, I may be making my own case!)
Other, side notes:
- I am stiff every time I get up (in the morning, after sitting at my desk, etc) .. I posted a reply to someone else's question about this today so I will not elaborate here.
- I am not confident my vision is 100%. Since the ON in Sept, I just feel like there are blurry spots. I don't notice them at home so much .. but I have 2 computer monitors on my desk at work, and see them when I look at the computer.
FYI:
I've trolled the other forums (such as MSWorld) and keep coming back to this community. It may not have the organization to have boards by drug, symptom, etc .. but it has a wonderful network of supportive people with a consistent message. That's a "thank you", btw.
~~ Lori
Best Answer
Hi Lori
I had ON 2 years ago and still get those blurry patches when Im trying to focus. For me, I really notice them while driving. Overall they dont cause me any problems and my Neuro Opthomologist cant find any issues with my eye, so I'm just trying to accept it as part of this horrid disease, although I do wonder if its not actually MS related. You are the only other person I know who gets these blurry spots.
I had ON 2 years ago and still get those blurry patches when Im trying to focus. For me, I really notice them while driving. Overall they dont cause me any problems and my Neuro Opthomologist cant find any issues with my eye, so I'm just trying to accept it as part of this horrid disease, although I do wonder if its not actually MS related. You are the only other person I know who gets these blurry spots.
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I'm not sure what, if any, significance to attach to intermittent tingles. I think a lot would depend on the severity. I often find that a leg/hand/arm/foot is tingling. If I move it around some the tingling seems to fade. In my head the tingling is not sufficient for me to pay too much attention to it.
I also will wake with an arm completely numb and unresponsive. It is always the arm between me and the bed. The numbness seems to be from lack of circulation. once I move it around the feeling comes back.
My hands do get cold for no reason. It's a bit odd, but still not anything I talk to my doc about. It's not at the stage where I want to take more meds to improve it.
The nurse, I suspect, was trying to learn more about your symptoms. I have some symptoms that are with me all the time, like tinnitus, neuropathic foot pain and nystagmus related double vision when I wake up. They are not tied to a relapse, they just are :-) The cold hands thing, and the occasional tingling are unpredictable and pop-up at random under random circumstances.
Things like the foot pain I try and treat, as it effects quality of life. The others I just note and move on :-)
Kyle