Hi guys,
I'm back, after being told by neuro no ms then 2nd ms very unlikely, have had 2 lots of brain and whole spine mri's both clear both done without contrast though, 2nd neuro told me my thyroid antibodies were very high and put me on steroids for 9 days, absolutely no change.
So here I go again,
June 07 face pain both sides of face under eye brows, down nose, cheeks around jaw it was a dull 24/7 constant chronic face pain, also had a very servere cold twice that I could not shake. Face pain laster about 8 weeks non stop no medication from dr stopped it.
About July I noticed tingling hands, feet, back right leg, groin, numbish feel to face and under feet.
Tingling lasted 24/7 thru to about November then stopped. But now it comes when I'm hot or drive or walk etc. My feet today still numbish and if I rub my fingers over top of foot they vibrate, buzz. I had weird feeling up arms (gone) weird feeling up legs still there, groin tingling always comes and goes, have been dizzy for about 6 months, no spinning just feel stupid in head and more dizzy when I turn head. I burn, get cold spots, zap and buzz, neuro told me high antibodies mean hashimotos enc........(some long name) he thought steroids would take it all away. Now he says ms very suggestive and I am to go into hospital for steroids and a L.P. But says if no bands or even just 1 he still can't dx me with ms. He told me to google H.E and says my symptons fit, even the worsening in heat as its inflammatory. I am no fool and yes in my heart I feel I have ms, there is absolutley nothing else this could be, I have gone from witty, organised and hyper person to a depressed, anxious and very peeved person with a worsening memory even my daughter has told me mum you keep saying the wrong words. This really sux, neuro says steroids may help still maybe thyroid antibodies, and I felt like telling him yes and my brothers mickey mouse................
Any advice would be great, if the LP if neg what then, I know I had burning feet years ago, I've also suffered dizziness before and 3 times I had lower back period pain that come and left. Would 2 clear brain and whole spine mri's and if my LP is neg mean definately no ms or is it just wishful thinking?
I'm scared the LP is gonna show ms and I'm scared it won't. I am definately in limboland..........
Help me guys, Melissa