Long Time, No Visit

[ArtistLike]

I was here every day for a while, but tend to post only when I'm experiencing strange symptoms.  Wellz, I'm back.

I've had a relatively long period of...well, normalcy.  A couple of months ago, I started taking a small dose of colloidal gold six days a week, and almost immediately, my vision improved, my hearing returned to normal, and my tremors and walking improved suddenly.  (Not coincidentally, I also weaned myself off Wellbutrin at the same time, and I am fairly certain that seriously exacerbated or even caused my tremors.)  All was great until Saturday.

I was in bed all day with a headache I couldn't shake, and then my hearing in my left ear started to become muffled exactly as it had last year, and my vision got screwy.  Yesterday I woke up without a headache but my hearing was still blocked.  Today I have tinnitus and have been itching on my hands and face, and my feet alternate between itching like crazy and pins-and-needles pain that hurts like @#&^#$.  I have tried anti-itch lotion with a steroid, but it doesn't help at all.  It has calmed and both of my feet now just are stinging moderately. I've had several dizzy spells over the last few hours, although I am sure those could be caused from anxiety. Last year all this happened suddenly in May, but also with numbness on the entire left side of my face that lasted for about a week and a half, as well as double vision over the same period of time.

I've had all the tests except LP and they're mostly normal.  I have "abnormally brisk knee-jerk reflexes" (4/5+ w/ clonus) and "blurry margins" in my right optic nerve disc, but that's all--everything else was normal when I had the litany of tests (MRIs/NCV/EMG/VER/BAER/EEG/Blood tests--ANA/Lyme/hormones/STDs).  So I'm just venting.  I know it's annoying to have someone ranting endlessly here, but this is my only outlet.  I did the symptom tracker thing for a long time, but the doctors looked at me like I was out of my mind when I brought printouts with me, so I stopped that and have tried just not to think about all this weirdness.  Oh well.

[ArtistLike]

Update: I think this could be a drug-withdrawal side effect.  My psychiatrist put me on Seroquel last fall when I was having a killer, KILLER pain in my right eye.  She had suspected that all my symptoms could be a conversion disorder, and because the eye pain was so intense, she put me on a very low dose of this atypical antipsychotic medication in the hope it would interrupt the conversion disorder process.  (Optic neuritis was ruled out because the pain came and went, about once every other day and lasting about an hour and a half each time.)  Anyway, I've been on it since, but I decided to wean myself off of it starting four or five days ago.  I did a Google search for Seroquel withdrawal and it turns out that Seroquel is also an antihistamine and withdrawal from it notoriously involves terrible itching anywhere and everywhere that can last for months.  Arrrgh!

But if that's what this is, it's really weird, because the foot pain feels exactly the same as it did the first time it happened two and a half years ago, when I was taking a long walk on a hot day and not on any medications whatsoever.

[LilMinnie]

Hi, I'm not diagnosed with anything either, but I know this... that doesn't mean I'm healthy. I believe you have something going on that you know isn't right. I don't want MS, or anything for that matter. I just want to find out what it is so I can deal with it. I believe that's what's happening with you, too.

We have had weather in the hundreds the last week or so, and even though I'm not out in it, it takes a toll on me. Normal is difficult for me to define as well. I don't know enough to give any advice, just wanted you to know I understand.

Hugs,
Minnie

[ArtistLike]

Thanks to you both.  Someone got angry with me several months ago when I posted a rant and told me to just appreciate that I'm healthy and haven't been diagnosed with anything, so I don't want to annoy people.

I've been itching all over all day and have slathered myself in a corticosteroid made for eczema relief and it seemed to be helping, mostly, except my hands and feet.  I just got back from the gym, about a 15-minute walk from my apartment.  It's about 95 degrees outside.  My hands were driving me nuts while I was walking, but as soon as I got to the gym and stopped walking, my feet started torturing me--first it was just tingling, and then it felt like rough sandpaper scratching the skin off the bottoms of both of my feet for about a half hour.  My vision was also out of focus and then got better.  I just got home and the same thing happened, though to a lesser degree.  My feet are tingling and kind of vibrating, along with my legs about 1/3 way up the calves, but they're not burning as intensely as they were about an hour ago.  Does anyone know if this is just a normal reaction to such hot temperatures?  I feel like I'm hypersensitive and don't even know what's normal and what's not anymore.

[bubbles_04]

Yes Please don't apologise for venting, thats why we are here. Hopefully answers will soon become clear, until then just try to enjoy life as best you can :).

[Lulu54]

you know we're good at listening and even if we can't offer advice. we're here.  I hope you feel better, soon.