MED QUESTION

[donthaveaclue]

IS THERE A SPECIFIC PLACE I CAN LOOK ON OUR FORUM TO SEE WHAT CERTAIN MS MEDS ARE?

I SEE A LOT OF FOLKS TALKING ABOUT DMD AND STEROIDS.  AND I WOULD LIKE TO KNOW WHAT KIND OF MED PEOPLE ARE TAKING FOR THEIR TN. I AM TAKING TEGRETOL (SP?) AND WHAT I READ ABOUT IT IS FRIGHTENING.

I GUESS I JUST WANT TO KNOW WHAT PEOPLE R TAKING FOR WHAT AND WHAT IS WORKING

THANKS
DEE

[Quixotic1]

I FORGOT TO USE ALL CAPS, I'M SORRY.  i HAVE THE ATTENTION SPAN OF A GNAT SOMETIMES.

Q

[Quixotic1]

Tegretol is actually one of the best known and safe meds out there for seizures.  All of the neuropathic pain meds are based on anti-seizure medications.  Tegreto is the preferred med in most childhood epilepsy and is the first line drug ion treating TN.

Don't worry about it.  If you read up on 100% of the drugs we use you would take none of them.  The literature has to report EVERYTHING that has ever occurred on meds even if it had nothing to do with it.

I was on Tegretol for TN also.  Never had any side effect from it.  I used a ton of it when I was practising pedicatrics.

Quix

[rendean]

HELLO AND WELCOME!

I USE TRILEPTAL FOR MY TN ALONG WITH GABAPENTIN, AND NORTRITYLINE.
IT KEEPS THE PAIN UNDER CONTROL BUT DOES NOT COMPLETELY MAKE IT DISAPPEAR.  IT'S LIKE THE TN IS THERE , LIKE MY VERTIGO, BUT JUST UNDER THE RADAR. IF I GET TOO TIRED IT FLARES.

BESIDES THE HEALTH PAGES MICHELLE POINTED OUT, YOU CAN  ALSO SEARCH JUST THIS COMMUNITY BY ENTERING YOUR TOPIC IN THE THE GREEN "SEARCH THIS COMMUNITY" BAR LOCATED UNDER THE HEALTH PAGES AND ON TOP OF THE RECENT ACTIVITY.

MANY FORUM MEMBERS HAVE VISION ISSUES AND PREFER UPPER CASE LETTERS BUT ALSO MANY NEED SMALL PARAGRAPHS WITH BREAKS IN BETWEEN SO IT IS EASIER TO FOLLOW, LIKE I HAVE DONE.

AGAIN WELCOME, GLAD YOU'RE HERE!
REN

[donthaveaclue]

HI MIKE,

I HAVE GABAPENTIN THAT MY DOC GAVE ME FOR THE STUFF I WAS FEELING ON MY SKIN THAT WASN'T THERE AND IT WORKED OK. I STILL FELT A LOT OF STRANGE THINGS BUT THEY WEREN'T AS PAINFUL, JUST FEELS LIKE HAIR TOUCHING ME OR AT NIGHT A LOT IT FEELS LIKE SOMEONE IS ACTUALLY KIND OF POKING ME.  ANYWAY, THE TN STARTED RECENTLY SO HE GAVE ME THE TEGRETOL. SOME OF MY FRIENDS HAVE QUESTIONED THE SAFETY OF THAT MED BUT IT IS WORKING SO I AM OK UNLESS I CAN TRY SOMETHING LESS DANGEROUS. THE GABAPENTIN DIDN'T REALLY HELP THE TN. I REALIZED TODAY HOW MUCH THE TEGRETOL IS HELPING AS I RAN OUT ON TUESDAY AND HAVE BEEN TOO TIRED TO GO TO WALMART AND PICK UP MY REFILL.  NEEDLESS TO SAY, I WOKE UP AT 5 AM AND WANTED TO RIP MY FACE OFF. THAT GOT ME OUT THE DOOR AS SOON AS WM OPENED TO GET MY MEDS!

I DON'T THINK I EVER GOT PAST 900 MG OF GABAPENTIN FOR SOME REASON. DON'T REMEMBER NOW.  SOME KIND OF CRAZY SIDE EFFECT I'M SURE.

THE LOWER CASE TYPING IS OK MOST OF THE TIME, BUT I HAVE HAD SOME VISION TROUBLE THE PAST 3 OR 4 DAYS SO CAPS ARE EASIER. I HAVE TO TURN MY HEAD TO THE SIDE TO READ LOWER CASE. HOW WEIRD IS THAT?! THANKS FOR ASKING ABOUT. THAT IS VERY CONSIDERATE OF YOU. AND THANKS FOR LETTING ME KNOW WHAT IS WORKING FOR YOU AS FAR AS THE MEDS GO.

DEE

[Mike_Shuswap]

SORRY, I MEANT TO USE ALL CAPS. ARE YOU OK WITH LOWER CASE TYPING?

[Mike_Shuswap]

Hello Dee

I'm taking Gabapentin for TN and other neurological symptoms.

So far 1200mg per day is working (barely).

Mike

[donthaveaclue]

THANK YOU! I WILL LEARN MY WAY AROUND SLOWLY BUT SURELY

[michelleric]

HI DEE,

THERE ARE HEALTH PAGES AT THE TOP RIGHT OF THIS PAGE.   YOU CAN FIND SOME GREAT INFORMATION ON MS THERE.

THE LINK I GAVE YOU BELOW TALKS ABOUT SOME OF THE MEDS FOR MS.


http://www.medhelp.org/health_pages/Multiple-Sclerosis/Common-Multiple-Sclerosis-Drugs--Medications--Treatments/show/108?cid=36


Michelle