ENT diagnosises MS

[saveone]

Okay I saw the ENT re vertigo/balance and difficulty swallowing.  He listened to me.  He asked questions.  He did my exam and said physically it appeared normal.  He is sending me for a VNG on the 18th.  

His analysis...problems caused by lesions/MS.  Wants to know why I don't have a formal dx of MS.  Wants to know what the neuros plans are.  I told him there were no plans.  He asked what they were treating me with.  I told him nothing.  He looks at me and says, Isn't anyone listening to you, examining you, reading the reports?  Why can you not get a dx?  He goes on to tell me he cannot refer me to a neuro but he can give me the name and number of a neuro located in WV who he believes I should see.  When I told him who my neuro was, just before he asked me to see this other doctor, he didn't say anything negative but I could tell he was not impressed.

I am going to get my GP to write the referral ASAP.  It astonishes me that he can see what everyone else can't.  He even watched me walk and then said, You have difficulty walking don't you.  Then he asks if I have feeling or decreased feeling in my feet.  He listened while explained the constant buzzing and difficulty walking/changing surfaces.  He also ask for copies of my MRI, CT, BAER, etc.

He truly amazed me.  Now if only he were a neuro. or my neuro cared as much.  Anyways, he has renewed my hopes of getting a dx.  Still I am not going to get too hopeful.  It is too hard when you are let down.

But I am smiling for now.  I am also tired.  It is 11:30 pm here and time for bed.

See you all tomorrow.
terry :-)

[Lulu54]

Terry,
This is good news - run with it and get into the other neuro.  I hope it happens for you in a short bit and doesn't drag on.

Lulu

[essdipity]

For whatever reason your post showed up twice. I think several more responses are on the other one.

ess

[Quixotic1]

This is wonderful news!  I do believe that having a doctor who sees the big picture and is willing to help you find other doctors who can also see the big picture - is the landmark that will take you to diagnosis.  Yes, see this neurologist in West Virginia.  Oh, I'll bet you feel enheartened.  

Keep us posted.  This is SO great!

Quix

[saveone]

Weird.  Where did the other responses go?

[rendean]

See... there are still a few good docs out there who remember why they started in this profession.  I'm so glad you found someoone to be an advocate for you!

Let us know how things go!
rendean