MS Drugs

[puppythreads]

Hi All,

Due to the fact that I lost my job 2 years ago because of what I now know was MS,  I also lost my insurance.  I am now on MaineCare, which used to be called Medicaid.  Does anyone know if the State run insurances pay for the expensive MS drugs, the ones used to slow or stop the progression?  After a recent trip to the emergency room with a serious viral gastroenteritis, I was unable to fill the script for the anti-vomiting drug because the State would not pay.  Also, my Dr. wants to up my gabapentin (neurontin) to 1800 mg a day, but the State will not cover that.  I hope this is not a sign of what's to come if  national health care passes.  It has me nervous.  As much as I hate needing to be on State insurance, it grieves me that I paid soooooo much in taxes over the last 10 years of my career and so far the Feds keep turning me down for disability.   That's a little off the subject, but any feed back anyone could provide about drugs covered or about their SS disability experiences would be appreciated.  

[Lulu54]

Hi puppythrreads and welcome to our special place here. I don't think we have yet met.

I found an intersting site that might be of use to anyone needing help with the drug cost - it appears to be a clearinghouse of information.  there is a list of drugs available for help and contact information - check it out at:

http://www.needymeds.org/resourcepages/ms.shtml


the low dose naltrexone that Alex mentioned is also a possible option instead of a dmd.  You can find lots more information on its use with MS through a search on google.

wishing you well,
Lulu

[puppythreads]

Thanks for the info, Alex.  I will check into it.  I am not currently taking narcotics even though the pain is pretty bad.  I would much prefer not taking them so if there is something else that might help, I am all for it.  

Karen

[HVAC]

Sorry for your troubles. Do they have a formulary on the Web if you google mainecare?

There is a drug called ldn which helps with symptoms which is fairly inexpensive. It counteracts with other drugs such as narcotics so you can't be on them. It has to be made at a compound pharmacy. It is not a DMD.

Alex