MS, Lyme, Going nuts?

[renschwa]

Hello again-

So I've had some other symptoms pop up... I wrote that about 2 months ago I started off with a sore left calf and sciatica type symptoms. Seems my pain has now traveled up to my neck/shoulders. I have burning pain in my shoulders/upper back/neck. Along with tingling and occasional aching type pain in both my hands, I have occasional shooting pains in both my calfs, Even some occasional tingling/pain in my face. I also have a hot spot feeling on my right ankle. I'm having an MRI of my neck on Wednesday to see if there is a pinched nerve/herniated disc. My ortho says if that shows nothing then I should next see a neuro. I'm beginning to think it is a neuro issue too, maybe MS or Lymes? I live in "Bucks" County, PA. Deer hang out in our yard! Though I never noticed a rash nor do I have flu like symptoms. Just wondering if any of you have experienced such wide ranging symptoms w/ MS or Lymes. Starting to wonder if I'm going nuts too!

[ErinZoe23]

a Neuro is not a good person to see to determin lyme from my experience..  Mine think im nuts to even think so even tho pa is very popular for lyme.  So i dont really deal with them when it comes to lyme at all because they diagnosed with ms and are sticking to it even tho they ruled out nothing else.    You would want to see an LLMD you have to go to a webpage and register and they will send you names and help you find one since they are  low profiled....  And the only lab for the testing you should use is Igenex ..... I made a post in the Lyme forum called MS or Lyme, you can probly find it on my profile page and they all told me a bunch of information on that post that helped alot... you should check it out!   Good Luck and hope that post heps!

[ErinZoe23]

Hey renschwa  I am also inbetween lymes and MS   i am diagnosed MS from no proof really but have way more symptoms that dont involve ms and involve lyme. Ive had the basic lyme test come back neg. but my doc said that dont mean anything at all because its a very unreliable test and have to do more        if you want you can messsge me all of your symtoms you have or ever had and we can compare and there are alot of websites that give u a Lyme checklist compared to an MS checklist

[renschwa]

Thank you. I have not yet seen a neurologist. Just seeing an ortho right now b/c this seemed ortho related when it first started.  

Who should I see to determine if this is Lymes?

[skarey]

Lyme can mimic MS, so make sure you get it ruled in or out.  I've been diagnosed with lyme and many of your symptoms are the same as mine.  Have you been tested for anything yet? Have you had any MRI's?  I suggest you get a lyme Western blot done.  Make sure you get a copy of the results.  Even if you are overall NEG, if you have ANY reactive or POS bands it may be significant.  

Good luck to you and hope you find some answers soon.  There is also a lyme forum here, so if you need any help or have questions please join us :)