It sounds frustrating.I know you just want them to find out what is going on. It sounds like something Neurological. It took me years for them to figure out my Neurological Problems were MS. I can relate to some of your symptoms. I have no clue if you have MS not being a Doctor.
So the newest doctor said that my monoclonal band isn't normal for ms so we are looking more towards lupus..do my symptoms match lupus?
Hi and welcome to our little MS community,
After reading your original post, I would be concerned with any neurologist who is willing to ignore Clinical signs and MRI evidence of dymelination, simply because you don't have 2+ Obands. It would be in your best interest to get a second opinion, preferably with a neurologist who specialises in MS.
I'm not sure why Lupus would be the alternate dx, if your MRI is showing dymelinating lesions, Lupus can be difficult to dx but generally it's dx based on positive blood tests and type of sx's eg butterfly face rash etc. There has been a little research on Lupus causing brain lesion but it's suppose to be extremely rare and that still wouldn't explain your dymelinating lesions, so i would think it's unlikely to be Lupus.
Can you get a second opinion outside of the VA? I know this involves extra $$$, but the VA has been known to drag their feet on diagnosing neurological signs and symptoms. Just a thought.
Lupus is diagnosed by blood tests, so what blood work was done to prove or disprove the Lupus???
As an ex-Navy wife, I can tell you that the workup you get is not going to be very good, especially if it is not combat injury related. Trauma, they are good at...medical, not good at all.