Aa
MS/fibro?
For the last couple of months I have been in so much pain, a couple of times I could've sworn I was dying. I've been to doctor after doctor, even the ER once or twice. They have referred me to a neurologist, but I have no insurance and do not have $300 to spend on one appointment and that doesn't include CT scans and x-rays and MRIs. I had a CT scan at the emergency room which showed nothing. I have searched all over the Internet for people with symptoms similar to mine but nothing comes up. In 2010, after the birth of my daughter I was in a lot of pain, my feet felt like they were asleep, my back, arms and legs hurt and I had headaches like I have never had-- before now I've had about 3 headaches in 29 years of life. The doctor then told me he believed I had fibromyagia- referred me to a neurologist and tried me on 3 different meds... none of which worked... Savella, Neurontin, and Alprazolam. The neurologist that he wanted to send me to is part of my doctors network, but I've heard nothing but complaints about him so I decided against going because once again, I had no insurance or money. Not to mention, about 2 months later the symptoms just disappeared for almost 2 years. At the beginning of the Summer I got so sick I could barely get out of bed long enough to take care of my kids... so back to the ER I went, when they had no answers, I assumed it could be my fibro, but didn't remember it feeling anything like I was feeling. I started to doing research, and found an article that says fibro can sometimes mimic MS. The more I delved into the symptoms MS causes the more I began to think I had it. I have every symptom named on any website written about MS. My head hurt so bad from back to front, in waves of pain, my legs hurt, my feet, muscle pain and joint pain, insomnia, no sex drive, mental fog, nausea, everything.. I have also been experiencing severe teeth problems. My teeth just break off and they don't really hurt, but I also found an article about people who have MS and have brittle teeth. I've spent thousands on my teeth before I landed in the monetary situation I'm currently in and have always taken care of my teeth, so you can imagine how upsetting and depressing this is for me. I try to be happy but it takes all of me to get my kids ready for school and come home to sleep, because I have nothing for the pain and hoped it would be gone when I awoke.. of course it wasnt. Now that Obamacare has gone into effect, doctors suck, they don't want to take the time to give a monkeys tail and do not care that's I may have a very serious disease and am in so much pain I they can see it in my eyes if they'd just take a second to look me over. I don't know where to turn or what to do but if I don't do something soon I won't die from this.. but I will die from an abscess that I can't get taken care of because I'm so broke. I live in Alabama and Alabama happens to be a state that didn't expand medicaid and I am not eligible for Obamacare. I just wonder what this sounds like for someone who has actually been diagnosed. Is it similar to your experiences? How do I get a doctor to realize I am really sick? I really thought the Fibro diagnosis made sense but the more I read and the fact the pain just disappeared for almost two years, coming back with a vengence, makes me think this is MS.
I'm sorry you are in pain and seemingly without access to medicine.
It seems to me that if you are not Medicaid eligible, there must be an Obama care plan available to you. You need to contact the locaql National MS Society chapter and ask if they can help you find it.
As Alex said, without a neurologist you are not likely to get an MS diagnosis. If you can find a plan you should be able to find a neurologist.
As to your symptom searches, because MS attacks the central nervous system it can cause just about any symtom imaginable. THis is why it will appear on almost any symptom search you do.
Some of what you describe has the ring of MS, other things not so much. The appearing/disappearing is characteristic of relapsing/remitting MS. The fatigue is also an MS top symptom.
Joint pain and dental issues are not typically associated with MS. MS symptoms tend to be localized, meaning your left foot ir your right hand. MS does not usually result in all over joint pain. I've also never heard of MS causing the dental issues you are having.
We are not doctors so we can't diagnose you. We can provide our experiences with the disease and diagnostic journey :-)
Kyle
It seems to me that if you are not Medicaid eligible, there must be an Obama care plan available to you. You need to contact the locaql National MS Society chapter and ask if they can help you find it.
As Alex said, without a neurologist you are not likely to get an MS diagnosis. If you can find a plan you should be able to find a neurologist.
As to your symptom searches, because MS attacks the central nervous system it can cause just about any symtom imaginable. THis is why it will appear on almost any symptom search you do.
Some of what you describe has the ring of MS, other things not so much. The appearing/disappearing is characteristic of relapsing/remitting MS. The fatigue is also an MS top symptom.
Joint pain and dental issues are not typically associated with MS. MS symptoms tend to be localized, meaning your left foot ir your right hand. MS does not usually result in all over joint pain. I've also never heard of MS causing the dental issues you are having.
We are not doctors so we can't diagnose you. We can provide our experiences with the disease and diagnostic journey :-)
Kyle
Hi Skylar Welcom to our group. Many of our friends here have visual issues that make reading large, solid blocks of text nearly impossible. Ive taken the liberty of breaking up your original post.
"For the last couple of months I have been in so much pain, a couple of times I could've sworn I was dying. I've been to doctor after doctor, even the ER once or twice. They have referred me to a neurologist, but I have no insurance and do not have $300 to spend on one appointment and that doesn't include CT scans and x-rays and MRIs.
I had a CT scan at the emergency room which showed nothing. I have searched all over the Internet for people with symptoms similar to mine but nothing comes up.
In 2010, after the birth of my daughter I was in a lot of pain, my feet felt like they were asleep, my back, arms and legs hurt and I had headaches like I have never had-- before now I've had about 3 headaches in 29 years of life. The doctor then told me he believed I had fibromyagia- referred me to a neurologist and tried me on 3 different meds... none of which worked... Savella, Neurontin, and Alprazolam.
The neurologist that he wanted to send me to is part of my doctors network, but I've heard nothing but complaints about him so I decided against going because once again, I had no insurance or money. Not to mention, about 2 months later the symptoms just disappeared for almost 2 years.
At the beginning of the Summer I got so sick I could barely get out of bed long enough to take care of my kids... so back to the ER I went, when they had no answers, I assumed it could be my fibro, but didn't remember it feeling anything like I was feeling. I started to doing research, and found an article that says fibro can sometimes mimic MS.
The more I delved into the symptoms MS causes the more I began to think I had it. I have every symptom named on any website written about MS. My head hurt so bad from back to front, in waves of pain, my legs hurt, my feet, muscle pain and joint pain, insomnia, no sex drive, mental fog, nausea, everything.. I have also been experiencing severe teeth problems. My teeth just break off and they don't really hurt, but I also found an article about people who have MS and have brittle teeth.
I've spent thousands on my teeth before I landed in the monetary situation I'm currently in and have always taken care of my teeth, so you can imagine how upsetting and depressing this is for me. I try to be happy but it takes all of me to get my kids ready for school and come home to sleep, because I have nothing for the pain and hoped it would be gone when I awoke.. of course it wasnt.
Now that Obamacare has gone into effect, doctors suck, they don't want to take the time to give a monkeys tail and do not care that's I may have a very serious disease and am in so much pain I they can see it in my eyes if they'd just take a second to look me over. I don't know where to turn or what to do but if I don't do something soon I won't die from this.. but I will die from an abscess that I can't get taken care of because I'm so broke.
I live in Alabama and Alabama happens to be a state that didn't expand medicaid and I am not eligible for Obamacare. I just wonder what this sounds like for someone who has actually been diagnosed. Is it similar to your experiences? How do I get a doctor to realize I am really sick? I really thought the Fibro diagnosis made sense but the more I read and the fact the pain just disappeared for almost two years, coming back with a vengence, makes me think this is MS."
"For the last couple of months I have been in so much pain, a couple of times I could've sworn I was dying. I've been to doctor after doctor, even the ER once or twice. They have referred me to a neurologist, but I have no insurance and do not have $300 to spend on one appointment and that doesn't include CT scans and x-rays and MRIs.
I had a CT scan at the emergency room which showed nothing. I have searched all over the Internet for people with symptoms similar to mine but nothing comes up.
In 2010, after the birth of my daughter I was in a lot of pain, my feet felt like they were asleep, my back, arms and legs hurt and I had headaches like I have never had-- before now I've had about 3 headaches in 29 years of life. The doctor then told me he believed I had fibromyagia- referred me to a neurologist and tried me on 3 different meds... none of which worked... Savella, Neurontin, and Alprazolam.
The neurologist that he wanted to send me to is part of my doctors network, but I've heard nothing but complaints about him so I decided against going because once again, I had no insurance or money. Not to mention, about 2 months later the symptoms just disappeared for almost 2 years.
At the beginning of the Summer I got so sick I could barely get out of bed long enough to take care of my kids... so back to the ER I went, when they had no answers, I assumed it could be my fibro, but didn't remember it feeling anything like I was feeling. I started to doing research, and found an article that says fibro can sometimes mimic MS.
The more I delved into the symptoms MS causes the more I began to think I had it. I have every symptom named on any website written about MS. My head hurt so bad from back to front, in waves of pain, my legs hurt, my feet, muscle pain and joint pain, insomnia, no sex drive, mental fog, nausea, everything.. I have also been experiencing severe teeth problems. My teeth just break off and they don't really hurt, but I also found an article about people who have MS and have brittle teeth.
I've spent thousands on my teeth before I landed in the monetary situation I'm currently in and have always taken care of my teeth, so you can imagine how upsetting and depressing this is for me. I try to be happy but it takes all of me to get my kids ready for school and come home to sleep, because I have nothing for the pain and hoped it would be gone when I awoke.. of course it wasnt.
Now that Obamacare has gone into effect, doctors suck, they don't want to take the time to give a monkeys tail and do not care that's I may have a very serious disease and am in so much pain I they can see it in my eyes if they'd just take a second to look me over. I don't know where to turn or what to do but if I don't do something soon I won't die from this.. but I will die from an abscess that I can't get taken care of because I'm so broke.
I live in Alabama and Alabama happens to be a state that didn't expand medicaid and I am not eligible for Obamacare. I just wonder what this sounds like for someone who has actually been diagnosed. Is it similar to your experiences? How do I get a doctor to realize I am really sick? I really thought the Fibro diagnosis made sense but the more I read and the fact the pain just disappeared for almost two years, coming back with a vengence, makes me think this is MS."
With out a Neurologist you will not get a MS diagnosis.It can take years to be followed by a Neurologist to get a MS diagnosis. You could go to a pain clinic. It cost me $10,000 out of pocket with Insurance to be diagnosed in 2007-9. Now I have Cancer and my treatments are $100,000 a week. Medical costs.
Alex
Alex
I am sorry you are in so much pain. I am sorry you are not getting any satisfying answers from the doctors you have seen. I am taking the liberty of reposting your post, breaking into smaller paragraphs to make it easier to read since many on this forum have vision problems and many msers have cognitive issues with long blocks of text. Hopefully this will help get you some answers from those who know more.
For the last couple of months I have been in so much pain, a couple of times I could've sworn I was dying. I've been to doctor after doctor, even the ER once or twice. They have referred me to a neurologist, but I have no insurance and do not have $300 to spend on one appointment and that doesn't include CT scans and x-rays and MRIs. I had a CT scan at the emergency room which showed nothing.
I have searched all over the Internet for people with symptoms similar to mine but nothing comes up. In 2010, after the birth of my daughter I was in a lot of pain, my feet felt like they were asleep, my back, arms and legs hurt and I had headaches like I have never had-- before now I've had about 3 headaches in 29 years of life.
The doctor then told me he believed I had fibromyagia- referred me to a neurologist and tried me on 3 different meds... none of which worked... Savella, Neurontin, and Alprazolam. The neurologist that he wanted to send me to is part of my doctors network, but I've heard nothing but complaints about him so I decided against going because once again, I had no insurance or money. Not to mention, about 2 months later the symptoms just disappeared for almost 2 years.
At the beginning of the Summer I got so sick I could barely get out of bed long enough to take care of my kids... so back to the ER I went, when they had no answers, I assumed it could be my fibro, but didn't remember it feeling anything like I was feeling.
I started to doing research, and found an article that says fibro can sometimes mimic MS. The more I delved into the symptoms MS causes the more I began to think I had it. I have every symptom named on any website written about MS. My head hurt so bad from back to front, in waves of pain, my legs hurt, my feet, muscle pain and joint pain, insomnia, no sex drive, mental fog, nausea, everything..
I have also been experiencing severe teeth problems. My teeth just break off and they don't really hurt, but I also found an article about people who have MS and have brittle teeth. I've spent thousands on my teeth before I landed in the monetary situation I'm currently in and have always taken care of my teeth, so you can imagine how upsetting and depressing this is for me.
I try to be happy but it takes all of me to get my kids ready for school and come home to sleep, because I have nothing for the pain and hoped it would be gone when I awoke.. of course it wasnt. '
Now that Obamacare has gone into effect, doctors suck, they don't want to take the time to give a monkeys tail and do not care that's I may have a very serious disease and am in so much pain I they can see it in my eyes if they'd just take a second to look me over. I don't know where to turn or what to do but if I don't do something soon I won't die from this.. but I will die from an abscess that I can't get taken care of because I'm so broke. I live in Alabama and Alabama happens to be a state that didn't expand medicaid and I am not eligible for Obamacare. I just wonder what this sounds like for someone who has actually been diagnosed. Is it similar to your experiences? How do I get a doctor to realize I am really sick? I really thought the Fibro diagnosis made sense but the more I read and the fact the pain just disappeared for almost two years, coming back with a vengence, makes me think this is MS.
For the last couple of months I have been in so much pain, a couple of times I could've sworn I was dying. I've been to doctor after doctor, even the ER once or twice. They have referred me to a neurologist, but I have no insurance and do not have $300 to spend on one appointment and that doesn't include CT scans and x-rays and MRIs. I had a CT scan at the emergency room which showed nothing.
I have searched all over the Internet for people with symptoms similar to mine but nothing comes up. In 2010, after the birth of my daughter I was in a lot of pain, my feet felt like they were asleep, my back, arms and legs hurt and I had headaches like I have never had-- before now I've had about 3 headaches in 29 years of life.
The doctor then told me he believed I had fibromyagia- referred me to a neurologist and tried me on 3 different meds... none of which worked... Savella, Neurontin, and Alprazolam. The neurologist that he wanted to send me to is part of my doctors network, but I've heard nothing but complaints about him so I decided against going because once again, I had no insurance or money. Not to mention, about 2 months later the symptoms just disappeared for almost 2 years.
At the beginning of the Summer I got so sick I could barely get out of bed long enough to take care of my kids... so back to the ER I went, when they had no answers, I assumed it could be my fibro, but didn't remember it feeling anything like I was feeling.
I started to doing research, and found an article that says fibro can sometimes mimic MS. The more I delved into the symptoms MS causes the more I began to think I had it. I have every symptom named on any website written about MS. My head hurt so bad from back to front, in waves of pain, my legs hurt, my feet, muscle pain and joint pain, insomnia, no sex drive, mental fog, nausea, everything..
I have also been experiencing severe teeth problems. My teeth just break off and they don't really hurt, but I also found an article about people who have MS and have brittle teeth. I've spent thousands on my teeth before I landed in the monetary situation I'm currently in and have always taken care of my teeth, so you can imagine how upsetting and depressing this is for me.
I try to be happy but it takes all of me to get my kids ready for school and come home to sleep, because I have nothing for the pain and hoped it would be gone when I awoke.. of course it wasnt. '
Now that Obamacare has gone into effect, doctors suck, they don't want to take the time to give a monkeys tail and do not care that's I may have a very serious disease and am in so much pain I they can see it in my eyes if they'd just take a second to look me over. I don't know where to turn or what to do but if I don't do something soon I won't die from this.. but I will die from an abscess that I can't get taken care of because I'm so broke. I live in Alabama and Alabama happens to be a state that didn't expand medicaid and I am not eligible for Obamacare. I just wonder what this sounds like for someone who has actually been diagnosed. Is it similar to your experiences? How do I get a doctor to realize I am really sick? I really thought the Fibro diagnosis made sense but the more I read and the fact the pain just disappeared for almost two years, coming back with a vengence, makes me think this is MS.
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