My name is Cindy. I had a MRI back in 1985, 30 yrs old, because of chronic fatigue,and weakness, but showed no leisons. So I have been living saying I have chronic fatigue syndrome. However my symptoms get so bad at times and do not really relate with CFS.
Now it is 23 years later and still have a clear MRI. My symptoms are: / wanting to walk to the left side / slurred and studdering speech / when leaning over to throw trash into garbage, I want to fall forward with it/ can't write with hand, like a hand and brain disconnection thing / really dizzy feeling, different then fainting, feeling more like I'm trying to go into a seizure/ grasping things is so hard, one weakness and other, hand and brain disconnection / Many times I have accidentally thrown things because I can't control the grasp of my hand and it leaves my hand / Miss judge and hit things constantly breaking things, with or without things in my hands / can't hold it, urine that is, its not a muscle thing. It is like it just comes and no stopping it / I have severe reactions when exposed to chemicals/perfume.
I either go totally paralized or feel like I'm going to go into a seizure. Very Very isolating!!!!
I was just sent to a Neuro Dr.,last month, April 08, but says NO MS, no leisons. What do I do now???? Too many years with this and getting worse??? Need a friend and doctor to talk to, PLEASE PLEASE!!!
Thanks so much!!! Cindy