Meds

[mo0427]

Well in a few hours I will be injecting myself with Rebif. I'm a like more prepared than last week. I was a bawl of tears. I hope this med works for me. Since it seems the medicine is the only option. Forget it I'm getting upset again.

[SarahL2491]

BIG HUG.......you'll do fine...........really, and you are taking care of yourself, which is soooo important!

[tammy197238]

Mo you will find someone who will love you for who you are and not be put off by what you have.  Im sorry your so sad right now.  But is sounds to me like your a very strong person who is also kind and compassionate.  There is someone out there who will appreciate and love you for your wonderful qualities...I know it.  My sister has cystic fibrosis which is a terminal illness that she has had since birth....guess what?  She found someone and has been married for 15 yrs!!  They are out there, you just have to be patient...and if you have to date alot before you find the right one, then so be it...don't get discouraged!  
7 sites???   I have 14!!!  Its funny how differently they teach each person.  
Take care,

Tammy

[mo0427]

@tammy197238  be proud of yourself. I'm very grateful and glad to have my nurse. During my training she taught me to never reinject the same sight for seven days. that's worked out perfect. I wasn't crying bcuz of the needle (they don't scare me) its just that for the rest of my life I now have to do this. And the arms aren't hard. If you sit your couch one arm on the armrest and roll it to the side that's an injection site. She taught me that going to the same site do often can cause bruising. My main issue is when I date when or if I have to tell. How that person will react I'm only 26

[Jepster]

Hi Tammy,

I started on Avonex a few months back and initially was fine with it. I wasn't given the option to inject into my arms, so it's been thigh from day 1. The first 2 weeks then the nurse watched me inject (I used the Avonex auto-injector, which injects the needle in for you, and you then press down the syringe yourself). I was fine.

I then tried to do it by myself without the nurse, and I also decided to do it without the autoinjector, which was a bad move! I injected but got really scared of the whole thing (my injection technique wasn't quite right, it turn out...) and the following week I spent an hour looking at the needle and couldn't make myself inject, with or without the auto-injector.

I ended up sending a text message to my Avonex nurse who rang me back and talked me into injecting. Since then then I've been feeling better about it each week, but that shows you what can happen to someone who before starting this whole malarky didn't have any kind of needle fear whatsoever. Make me realise how really impressive it is that people who really don't like needles manage to work the injections (irrespective of the amount of protesting / crying / screaming etc, point is that you did it and didn't chicken out :) )



  

[tammy197238]

I just started avonex 3 weeks ago and it is a shot injected into your muscle.  I was ok the first 2 weeks because it was in my arm.   I havent given myself one yet because the nurse that came to train me said I needed a back up person because there would be days I wouldn't feel like doing it myself and there are locations where it isn't possible to inject myself (arms).  I cried in front of her too.  I told her I didn't feel good, my back hurt, my head shook all time, I was tired and I was sick of all of it.  I felt like I had been given the diagnosis and set up to have her come show me how to give myself injections and that was it.....I was left on my own. My next appt. with neuro was set up for 2 months later.  She was really nice and told me to think of the injections as a positive...that I was doing something for me and my family so that I could be active...she said it was normal to grieve a diagnosis like MS and ok to be scared.
Yesterday was my first injection in my leg and I dreaded it.  I was totally ok with my arms but never had injections in leg and was scared to death it was going to hurt.  My poor husband.  he got it all ready and I am sitting there saying no wait...pushing his arm and the needle away from me...crying like a big baby.  I was even trying to talk him into just doing it in my arm again.  He wouldnt give in and eventually after tears and anger at him I did take it in the thigh and I survived and wasn't nearly as bad as I thought it was going to be.  I don't know that I will ever be able to do it myself...I'm such a big baby.  Whats funny is I've given birth to 3 children, had IV's, 3 lumbar punctures but can't inject myself and even get very anxious when my husband was doing it in my leg yesterday.  I'm hoping like you that I will get to the point where I am not dreading injection day so much anymore.  At least you are strong enough you are doing it yourself.  You should be proud of yourself...dont worry about crying in front of the nurse...I'm sure your not the first and its healthy to let your feeling out.  Good luck with everything.

Tammy

[mo0427]

I thus far don't care for the auto injector I started REBIF as well. I just want this to go away. HOPEFULLY this meds make it better

[lilbit1986]

I feel your pain! I have been injecting for a little over a month and I know it *****! But, it is what we have to do to TAKE CHARGE of the MS.

It'll get better as time goes on :) I use the Rebiject (auto-inject) & that helps me.....a little....

Sending you BIG HUGS!!!!!!

[mo0427]

Thanks you all I did it, but before I did so I cried in front of the nurse. I felt like a baby, I feel ok now when I first took it my body felt like it was going crazy. But its only day one of the meds.

[jujuminx]

I know it's tough.  Embrace the fear and feeling of helplessness.  In time it will be replaced by the feeling that you are doing all you can to take care of yourself and your future.

We know this is not anything that you planned on having in your life, none of us planned on this. Focus on the fact that these drugs give us a chance to have a quality of life that could only have been hoped for just 15 yrs ago.

Hang in there, it does get better.

Julie

[Mike_Shuswap]

In no time you'll be a pro at this.

It's good you're doing something to stop or slow your MS.

There are a lot of us on here who use DMD's, and we're all with you on this.

It'll be OK....

Mike

[HVAC]

I am sorry this is tough. No one likes it. Big Hug.

Alex

[Guitar_grrrl]

It's not so bad.  I did Rebif for a while, and I'm doing Betaseron now.  You get used to it.  Just remind yourself you're taking charge of your MS.

Be strong.  Good luck!