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Hello I am new
I am new to here and the possibility of MS. I go Monday to get the results of My MRI of the Brain W and WO contrast and a MRI of the IAC W/WO Contrast. Have had Blood Work done that the neurologist ordered that was the B12 and Lyam Tiller. My neurologist called and wonted me to start on B12 pills it was not low but was not as high as he likes it to be the lady who called said. My ENT is who sent me to the Neurologist after he the ENT listened to all my problem I have had over the last 1yr or so. I have also had an ENG test done I call it a Dizzy/balance test hope to never have that done again. Was sick all day the day I had it done and took all the energy I had for the next 3or 4 days. I showed a 45% weakness in my right ear. What ever that mean.
How do you deal with the waiting and what if they tell they did not find anything? Now sure what I will do if they tell me that I am tired of know in my mind that something not right………And not know what it is. But I have been reading that I my not even find an answer….. But when you don’t what do you tell people when you are only 36 and you cant hardly get out of a chair cause it hurts and you are as stiff as can be or that you go to take a nap and wake up with a pain in your hip and cant hardly walk but you was fine or not hurting in that spot when you went to sleep.
Over look my spelling I am not to good at it sometimes.
How do you deal with the waiting and what if they tell they did not find anything? Now sure what I will do if they tell me that I am tired of know in my mind that something not right………And not know what it is. But I have been reading that I my not even find an answer….. But when you don’t what do you tell people when you are only 36 and you cant hardly get out of a chair cause it hurts and you are as stiff as can be or that you go to take a nap and wake up with a pain in your hip and cant hardly walk but you was fine or not hurting in that spot when you went to sleep.
Over look my spelling I am not to good at it sometimes.
here is the paper i give the neuro when i seen him.
the only other dr have seen is my Reg. Family Dr.
But in May I got up one morning did not feel just right got ready for work. Drove to work got out of the car and I was as drunk felling as could be went later that morning to the DR. said I had fluid on my ear give me some med. Done this in June right at a mothe later. Seen a nurse pactinoer same thing fluid in ear said if have another spell might need to see an ENT. Woke up one morning in July. Was so sick and dizzy could hardly think was the worst felling I have ever had……… So my Reg. Dr sent me to The ENT he listen to all my problems I had been having and. There was things that he seen that he thought there was more to it than just ear thing. Like I burnt my head right side with a curling iron pretty bad. I was like my reaction time was off and it took my brain a min to say we are Burning hello……… Done my right hand the same way getting something out of the toaster oven I can be walking down the hall and run in the door facing like my perception is off. There is some other things I am sure I just can’t think right know.
This is the Reason i was sent To the ENT and then the ENT listened to the following and sent me to a Neuro.
Symptoms:
Dizziness
I feel like I keep moving even after I have stopped. If I just turn my head to quickly I feel dizzy. Sometimes I have even felt a little lightheaded.
I feel like you do when you are drunk, but I have not had anything to drink and I don’t drink.
Feeling out of balance, Sometimes I feel I‘m not walking in a straight line.
I have felt pressure in my ears. I was in bed one morning before getting up I rolled over to the other side (was on my left side) and in my left ear I could feel something in it move as I was rolling over. When I got rolled over to the other side and stopped I felt it stop moving to just a little after I stopped moving. I did not have a very good day that day at all see ** at bottom.
I feel sometimes things are just not right, but not sure how to explain what or how I do feel.
Tired no matter how much I sleep, Exhausted, Fatigued.
No energy for anything I want or need to do. Taking the laundry out of the washer and putting it in the dryer and take the stuff out of the dryer and hanging it up takes all I have some days just to do that plus walk back up the stairs.
I do feel weak. Sometime thing that I could pick up before that are not that heavy I have a hard time with now. No strength.
I keep pain in my right shoulder, up my neck on the right side and down on my lower back on my right side (the spot on my back has been hurting for over a year). Sometimes I hurt all over. The pain in my shoulder & neck I have been seeing the chiropractor for it was helping but it has came back just like it was when I started seeing him. I started seeing him because I had a MRI on my shoulder and DR. Chaney said it came back with nothing wrong with it according to the MRI, but it sure hurts.
As of Monday July 14, 2008 I have not been taken any of my regular medicines. They are Prevacid 30 mg, Triam/hctz 37.5-25mg, Effexor XR 75 mg, Yasmin 28. I stopped take them to see if any of them was causing my problem. I am still feeling the same way as I have been. I was out of sorts on Monday, Wednesday, as for today it’s to early to tell for sure. Right this minute I’m not feeling too bad.
Tuesday I had a pretty good day. I did not feel all like I would have liked to but I was not dizzy for that day I could drive with no problems.
Wednesday I did not feel good. Thought I was going to have a head ach so I took some Tylenol , Did not help also took my Fexofenasine 180 mg to see if it was allergies they did not help either this was around 10:00 am. Took a nap latter in the day to see if that would help did a little not a lot. Put an ice pack on my head It was not hurting like a head ack put it did not feel right. Before we went to church I took Clonazepam 0.5 mg that did help today.
I had been taken my Meclizine 25 mg some as I had trouble, but they did not take all the dizziness away.
The Week of the 7th -13th: Can’t remember Monday or Tuesday, but Wednesday was bad did not feel good at all was dizzy and all. Thursday was not much better. Friday was a little bit better I could function some drive and clean house. Saturday I did not feel too bad during the day, but as the day went by closer to that night as I was going to bed I started feeling dizzy and my head was not feeling just right.** I told my husband that if sleeping did not help it would not be a good Sunday for me. I went on to bed got up on Sunday and I was right I was Drunk, Dizzy all day took Meclizine on and off all day they did not do me much good. ** This went on into Monday.
July 27, 2008 had a real bad muscle spasm or cramp in my right arm after holding camcorder for a while. I have never had that happen before.
I cannot take the heat like I use too. If I am out in the heat I get to feeling weak and funny. Talking too hot of a shower can do the same thing.
I worked three days at School this week. Standing all that time was very hard on me. One of the day’s I worked I got home at 3:00 pm before 6:00 pm I had done taken 2 different naps. The next day I worked I was just so tired. Just going up and down the 2 flights of stair took all off my energy. On the 3rd day I had to take a class for school. We did some self defense type moves. I could hardly do them, It’s was like I was 90 yrs. Old trying to do them. I done this same class the year before and I had no problem with doing it.
Writing to much at one time makes my right shoulder hurt, Just like I had been exercising it too much. Typing to much makes me tired in my arms the right is worse than the left.
If I get down in the floor I can hardly get up. Sometimes I have a hard time getting up from a chair if I have sit too long.
Sometimes in my right arm folding a blanket tires my arm out before I ever get done folding it. The simplest things are becoming a hard thing to do sometimes
Nov. 26, 2007- Did not sleep well at all. Fingers are a little swelled. My right side across my lower back hurts.
Nov. 27, 2007- Was later when I went to bed was not sleepy. Was stiff when I went to bed tonight, was not as bad this morning getting up.
Nov. 28, 2007- Was late when I went to bed 10:30. I had been going to bed at 8:30 - 9:00. I was not sleepy. I have night sweats and weird dreams. Was not as stiff this morning as I have been.
Nov. 29, 2007- Did not sleep well at all last night. Had a bad dream that someone stole my car. Woke up with my chest hurting. Had night’s sweats again last night.
Nov. 30, 2007- Felt ok when I got up. Still did not sleep to good.
Dec. 1, 2007- I slept ok last night. But my lower back is hurting up my right side. My joints are hurting this morning. My right Knee was hurting when I went to bed couldn’t hardly walk after sitting. No night sweats last night. My hands seem a little swelled this morning.
Jan. 26, 2008- Took Blood presser when I go up it was 104/75 P85. So I looked at the rest of the times I have taken my blood pressure they are 117/77 p 71, 106/76 p84, 120/76 p74, 99/78 p105 this one was me just getting up. 112/80 p88, 94/61 p72, 99/83 p85, 113/85 p95, 106/76 p86, 120/82 p89, 109/80 p102, 96/63 p86, 118/85 p112 this was after resting. Felt bad around 3:30 today had forgot to take all Med. I believe my Blood was up when I got home at 8:30 it was 127/80 p86. Later it was 105/71 p60.
Jan. 27, 2008- 102/83 p91 still in the bed.
the only other dr have seen is my Reg. Family Dr.
But in May I got up one morning did not feel just right got ready for work. Drove to work got out of the car and I was as drunk felling as could be went later that morning to the DR. said I had fluid on my ear give me some med. Done this in June right at a mothe later. Seen a nurse pactinoer same thing fluid in ear said if have another spell might need to see an ENT. Woke up one morning in July. Was so sick and dizzy could hardly think was the worst felling I have ever had……… So my Reg. Dr sent me to The ENT he listen to all my problems I had been having and. There was things that he seen that he thought there was more to it than just ear thing. Like I burnt my head right side with a curling iron pretty bad. I was like my reaction time was off and it took my brain a min to say we are Burning hello……… Done my right hand the same way getting something out of the toaster oven I can be walking down the hall and run in the door facing like my perception is off. There is some other things I am sure I just can’t think right know.
This is the Reason i was sent To the ENT and then the ENT listened to the following and sent me to a Neuro.
Symptoms:
Dizziness
I feel like I keep moving even after I have stopped. If I just turn my head to quickly I feel dizzy. Sometimes I have even felt a little lightheaded.
I feel like you do when you are drunk, but I have not had anything to drink and I don’t drink.
Feeling out of balance, Sometimes I feel I‘m not walking in a straight line.
I have felt pressure in my ears. I was in bed one morning before getting up I rolled over to the other side (was on my left side) and in my left ear I could feel something in it move as I was rolling over. When I got rolled over to the other side and stopped I felt it stop moving to just a little after I stopped moving. I did not have a very good day that day at all see ** at bottom.
I feel sometimes things are just not right, but not sure how to explain what or how I do feel.
Tired no matter how much I sleep, Exhausted, Fatigued.
No energy for anything I want or need to do. Taking the laundry out of the washer and putting it in the dryer and take the stuff out of the dryer and hanging it up takes all I have some days just to do that plus walk back up the stairs.
I do feel weak. Sometime thing that I could pick up before that are not that heavy I have a hard time with now. No strength.
I keep pain in my right shoulder, up my neck on the right side and down on my lower back on my right side (the spot on my back has been hurting for over a year). Sometimes I hurt all over. The pain in my shoulder & neck I have been seeing the chiropractor for it was helping but it has came back just like it was when I started seeing him. I started seeing him because I had a MRI on my shoulder and DR. Chaney said it came back with nothing wrong with it according to the MRI, but it sure hurts.
As of Monday July 14, 2008 I have not been taken any of my regular medicines. They are Prevacid 30 mg, Triam/hctz 37.5-25mg, Effexor XR 75 mg, Yasmin 28. I stopped take them to see if any of them was causing my problem. I am still feeling the same way as I have been. I was out of sorts on Monday, Wednesday, as for today it’s to early to tell for sure. Right this minute I’m not feeling too bad.
Tuesday I had a pretty good day. I did not feel all like I would have liked to but I was not dizzy for that day I could drive with no problems.
Wednesday I did not feel good. Thought I was going to have a head ach so I took some Tylenol , Did not help also took my Fexofenasine 180 mg to see if it was allergies they did not help either this was around 10:00 am. Took a nap latter in the day to see if that would help did a little not a lot. Put an ice pack on my head It was not hurting like a head ack put it did not feel right. Before we went to church I took Clonazepam 0.5 mg that did help today.
I had been taken my Meclizine 25 mg some as I had trouble, but they did not take all the dizziness away.
The Week of the 7th -13th: Can’t remember Monday or Tuesday, but Wednesday was bad did not feel good at all was dizzy and all. Thursday was not much better. Friday was a little bit better I could function some drive and clean house. Saturday I did not feel too bad during the day, but as the day went by closer to that night as I was going to bed I started feeling dizzy and my head was not feeling just right.** I told my husband that if sleeping did not help it would not be a good Sunday for me. I went on to bed got up on Sunday and I was right I was Drunk, Dizzy all day took Meclizine on and off all day they did not do me much good. ** This went on into Monday.
July 27, 2008 had a real bad muscle spasm or cramp in my right arm after holding camcorder for a while. I have never had that happen before.
I cannot take the heat like I use too. If I am out in the heat I get to feeling weak and funny. Talking too hot of a shower can do the same thing.
I worked three days at School this week. Standing all that time was very hard on me. One of the day’s I worked I got home at 3:00 pm before 6:00 pm I had done taken 2 different naps. The next day I worked I was just so tired. Just going up and down the 2 flights of stair took all off my energy. On the 3rd day I had to take a class for school. We did some self defense type moves. I could hardly do them, It’s was like I was 90 yrs. Old trying to do them. I done this same class the year before and I had no problem with doing it.
Writing to much at one time makes my right shoulder hurt, Just like I had been exercising it too much. Typing to much makes me tired in my arms the right is worse than the left.
If I get down in the floor I can hardly get up. Sometimes I have a hard time getting up from a chair if I have sit too long.
Sometimes in my right arm folding a blanket tires my arm out before I ever get done folding it. The simplest things are becoming a hard thing to do sometimes
Nov. 26, 2007- Did not sleep well at all. Fingers are a little swelled. My right side across my lower back hurts.
Nov. 27, 2007- Was later when I went to bed was not sleepy. Was stiff when I went to bed tonight, was not as bad this morning getting up.
Nov. 28, 2007- Was late when I went to bed 10:30. I had been going to bed at 8:30 - 9:00. I was not sleepy. I have night sweats and weird dreams. Was not as stiff this morning as I have been.
Nov. 29, 2007- Did not sleep well at all last night. Had a bad dream that someone stole my car. Woke up with my chest hurting. Had night’s sweats again last night.
Nov. 30, 2007- Felt ok when I got up. Still did not sleep to good.
Dec. 1, 2007- I slept ok last night. But my lower back is hurting up my right side. My joints are hurting this morning. My right Knee was hurting when I went to bed couldn’t hardly walk after sitting. No night sweats last night. My hands seem a little swelled this morning.
Jan. 26, 2008- Took Blood presser when I go up it was 104/75 P85. So I looked at the rest of the times I have taken my blood pressure they are 117/77 p 71, 106/76 p84, 120/76 p74, 99/78 p105 this one was me just getting up. 112/80 p88, 94/61 p72, 99/83 p85, 113/85 p95, 106/76 p86, 120/82 p89, 109/80 p102, 96/63 p86, 118/85 p112 this was after resting. Felt bad around 3:30 today had forgot to take all Med. I believe my Blood was up when I got home at 8:30 it was 127/80 p86. Later it was 105/71 p60.
Jan. 27, 2008- 102/83 p91 still in the bed.
Hi there -
I know the waiting is tough...Ive dealt with it more times than I care to remember!! If you dont mind, can you tell me what your symptoms are/were? And have you seen any ohter doctors as well as the neuro and ENT? Just curioius...
Stick around - there are truly great people on this forum, Dxd and unDxd, everyone welcome, and everyone really compassionate.
Praying you get the results you need..
Lauri
I know the waiting is tough...Ive dealt with it more times than I care to remember!! If you dont mind, can you tell me what your symptoms are/were? And have you seen any ohter doctors as well as the neuro and ENT? Just curioius...
Stick around - there are truly great people on this forum, Dxd and unDxd, everyone welcome, and everyone really compassionate.
Praying you get the results you need..
Lauri
Hi from me too Honeybee!
Thank you for joining us. Well, no matter what this Dr says, we will be right here with you. Like Doni says above, you are not alone and we will support you while you wait and after.
Monday is right around the corner and so are we.
Welcome Honeybee!
Hope to see you around soon,
-Shell
Thank you for joining us. Well, no matter what this Dr says, we will be right here with you. Like Doni says above, you are not alone and we will support you while you wait and after.
Monday is right around the corner and so are we.
Welcome Honeybee!
Hope to see you around soon,
-Shell
Hi, and welcome to this forum, we are all happy that you are here. You will find this is a wonderful place to be when faced with the situation you are now in. We are all here to give comfort and support.
Sounds like you have had most all the tests and are just waiting for your results. When are you suppose to be getting them?
I am not dx and am not medically inclined, but I wanted to welcome you while waiting for the more experienced people to answer you. At the top right corner of the page you will see something called health pages, they are wonderful and very informative.
I am sorry you are not feeling well and are going through the process of finding a dx, but we are glad you are here.
doni
Sounds like you have had most all the tests and are just waiting for your results. When are you suppose to be getting them?
I am not dx and am not medically inclined, but I wanted to welcome you while waiting for the more experienced people to answer you. At the top right corner of the page you will see something called health pages, they are wonderful and very informative.
I am sorry you are not feeling well and are going through the process of finding a dx, but we are glad you are here.
doni
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