More on CCSVI

[MCBCON]

http://www.facebook.com/notes/ccsvi-in-multiple-sclerosis/two-new-papers-published-in-phlebology-dec-3rd/472445562210

[RedFlame]

I really don't speak from much knowledge about this, but have wondered about the validity of research data.  

If PPMS ends up being a different disease entirely what are they considering it to be?  Anyone know?R

Red

[MCBCON]

Time and politics will move the debate a and understanding.  Hopefully the debate happens in the science & medical community and not too much in the political arena.

[NZer1]

I sometimes wonder if CCSVI will create a new understanding of de-generative diseases and create a new understanding of the differences between the episodic RRMS and the progressive SP&PPMS. It does seem from the figures that have come out that 'types' of MS respond to fixing valve issues found in the jugular, and other issues with the azygus malformations etc., have a different response.
One way or another more knowledge is a good thing. Hoping people will stay with trials only and not commercial enterprise if they are wanting to be test pilots.
The techniques are changing quite rapidly to overcome the restenosis and recoil occurrence.
It will be interesting following the non MS 'controls' and see if over time anything interesting develops with their CCSVI result!

[COBOB]

There is still quite a bit of debate as to whether MS is a disease or several diseases with similar presentations.  CCSVI may be found to works for some limited subset of MS patients, but the current MRV Buffalo selection study looks pretty dismal.   Whether the procedure works is a different question all together.  At this point they can only seem to pick out the patients that have CCSVI  and MS with MRI/MRV about 55% of the time vs Non-MS controls and 25% of the Non-MS Controls are selected for having CCSVI.  

Bob

[RedFlame]

It's so darn controversial.  It seems like a quick and easy fix for such a complex disease.  Do they have any objective studies?

Red