Newbie

[ironwoman]

I have been reading the posts, and it looks like there are a lot of new people...me being one of them.  I am "pending" my dx of MS, they are ruling all other things out via blood test and nerve conduction, but in my heart I know I have MS.  I have a pacemaker so I can't have an MRI, so we have to do this all clinically.  My right leg has not worked right or felt right for over a month, the awkward sensations are now in my right arm and cheek.  Bladder problems too...just like most everyone else.  It is hard to see our bodies change so quickly, wondering if what we are left with is permanent.  June 21st, I completed Ironman Coeur d'Alene, and now I can't do 1/3 of what I could back then.  I am/was in training for the Chicago marathon....on my best day, I can run 12 miles, but it is with a lot of pain and difficulty from my muscles not working right.  My marathon is in 3 weeks, and I will be lucky if I can walk/run it let alone race it.  I know we all come from different backgrounds, and some might say, "well at least you can still exercise".  Yes, I can, on some days, but I still grieve the drastic change in what I could do and what my limits are now.  It is sad no matter what.  I am just hoping I can get my dx soon, and start treatments that might improve my situation.  Are most deficits permanent?  

[HVAC]

I can't do things as well, but I live an active life. Horseback riding, hiking, walking, and hot air ballooning.

I hope you get answere soon.

Alex

[Ufrustrated2]

i can understand your frustration/saddness not being able be at your performance level you were just a short time ago. yes, we try to count our blessings even when things are taken away...but, i still long to have consistent days of feeling well and to do some activities i used to do...but it just hasn't happened...yet.

permanent? hard to say really. for me, the flares are lasting longer these days. some old symptoms have not returned but some new ones have reared their ugly head and not left so soon.

tyr to enjyo your runs anyways whn you can

[Erin0313]

Welcome newbie :)

I am sorry to hear that you are suffering but you have come to the right place with great compassionate people who have been or are going through a lot of the same things.

Sometimes just having people to share can lift your spirits - I hope that it will for you

As for most deficits being permanent I think it depends on what type of MS you have. I know that my things get better after a flare but usually not 100% anymore. I'm sure others will better explain.

Advice?? Don't push too much with your excercising because when you over due the price can be huge.

Good luck & keep in touch
Erin :)