I have had MS symptoms for 5 years now. It started mild but has worsened with each flare over the last 5 years. I have seen so many doctors, probably more then I can count on two hands, and been told so many times that my symptoms are not due to anything. I finally had a doctor who sent me to a Neurologist who diagnosed me with Fibromyalgia and began treatments for the fibro. Now, here is the issue. While the Fibro diagnosis explains the pain, fatigue, muscle spasms, and difficulty sleeping it doesn’t explain many of these symptoms:
Numbness in the left side of my body
Falling over frequently due to dizziness during a flare
Difficulty walking, dragging my left foot because my leg doesn’t want to lift up
Blurry vision (this actually caused a car accident and my neuro still wouldn’t listen to me)
Difficulty using my left hand to pick up objects, dropping items because my grip isn’t good enough
Some of these symptoms will fade when the flare is over but some of them have stayed. The numbness gets worse with each flare and it sticks around after the flare fades. I often have to use my husband’s wheelchair when we go out to an event because I will fall over and hurt myself or trip from walking, or the pain gets bad enough that I cannot walk anymore.
My MRI was done 1.5 years ago and came back clear, so my neuro refuses to entertain the idea that I might have MS or ANYTHING other than fibro. He says that if I had MS that the lesions would have shown up on the MRI since I had been having symptoms for 3.5 years at that point in time, and he has no real reason why he won't look at other possible diseases. I wonder if I should find a new neuro but frankly… I am sick of doctors. I have seen so many of them and I am tired of having so many doctors dismiss my issues. I understand that I shouldn’t self-diagnose and that isn’t what I am trying to do. I am trying to get my doctor to listen to my whole story instead of the parts he wants to listen to. I don’t want to be one of those people who get stuck with the fibro diagnosis because once you’ve been labeled, you’ve been labeled.