New MRI results

[Kathi318]

I've had MS for over 40 yrs. For the long I am doing resonnably well. Have been decling lately so Dr. did an MRI. It showed that my hypothalamus is completely surrounded by white matter.  Can anyon tell me how this would effect me. I want to know if a lot of my problems are related to this. Dr. gave very little information.

[sllowe]

Hi Kathi!

Hello to you and thank you for joining us too.  Wanted to say this yesterday, but as always, time get me everytime. As a vereran MSer you must have lived through so much of what we discuss.  I look fwd to having you here.

Thank you so much for describing some of your story with us - you are quite the athlete.  Once an athlete, always an athlete I say, just the sport may change.  

Did you start DMDs at any point once they came along?

I should know more about the brain given my time here, but I just don't it enough to provide a factual response to the hypothalumus.....

Not to worry though, someone will make reference to it soon....

Thanks again and see you around!
-shell

[Kathi318]

My journey with MS started when I was in 11th grade,1957, when I went to take a step down the stairs and there was no stair there. I was very athletic but in 8th grade I had to stop playing intermural basketball. So I guess it really started sooner then I thought. I could no longer jump to shoot for a basket. When I landed my legs weren't there.
I always thought so what I can still dance and this I did every nite. There were some nights where my rythum was off but I'd been up since 6am and it was 9pm. What did I expect. I really did walk 3 miles to and from school 4 x's a day as I came home for lunch and then after supper I would walk another 2 miles to get a ride. Good heavens any one would lose their rythum after all that exercise.
I water skied also and eventually to get me up I had to scrunch down into water, hold my knees tight and pray I would get up. Always did and still do have the strength in my legs to push to move something. I skied with 4 guys and we had a routeen we followed and as the center and farterest back i would dart back and forth over their waves. ski one one ski and could even do it barefoot. That is until I went over the ski ramp and when iI landed I didn't have any legs. I landed face first on skies and was bruised from head to toe. I was 16 going on 20 then. Never skied again.
Drs. had no explanation for what was happening and didn't until on my 30th birthday I woke up and couldn't walk. I finally had an answer but where was I going with it?
There is a long story about a long trip. Much to much for here, but anyways this is how my journey of 40 some yrs. started. Kathi

[Lulu54]

Hi Kathy,
Welcome to the MS forum here at MedHelp - its great for all of us to hear the experiences of those of you who have lived with MS for a long time.  I know absolutely nothing to add to your question here.  I trust Q or someone else will be of help.

If you ever feel inclined, we would love for you to share your story of life with MS.

be well,
Lulu

[steph74]

I don't have an answer but I'm bumping your question for you.

Stephanie