Other NMO DXs

[FrankieT]

Hi, I have been lurking around this forum since about September. I finally have a clinical DX of NMO and am just awaiting some final test results to see how badly my optic nerve is damaged along with where and how may lesions in the spine, or spinal cord, I should say, there are. I already took the blood test.

My Neuro has given me two treatments to look at. Both which seem to be made for MS treatment. Once is Copaxone and the other is Rebif. Both of which I cannot afford, but also both which seem to me the inappropriate course for treatment.

My real question is, are then any other NMO dx on this forum that could share with me their course for treatment and how successful it has been so far. I want to make sure I am considering all things possible and this forum is the best source for testimonial.

Thanks,

[sllowe]

Hi FrankieT,

One of our forum members "doublevision" is versed in the testing for NMO and was worked up extensively if I'm remembering correctly.

I'll hit her up and point her to your question.

Welcome back,
Shell

[Wobbly]

I see.. I'm sorry that I can't help with an answer.. I'm Dx with PPMS and don't take any DMDs...only meds for my symptoms..

hope other jump in to give some answers..

take care of yourself
wobbly
dx

[FrankieT]

Thanks for responding. NMO - Devic's Disease. Neuromyelitis Optica. Symptoms are very very similar to MS except this one damages the spine and optic nerve. Depending on who you talk to, treatments are the same or can be very different. I am trying to make an educated decision on treatment, but am finding it hard to become educated.

I figured listening to the horses' mouths would be better than listening to pharmaceuticals.

[Wobbly]

Hi there, I'm not sure what a NMO is?  I think I'm having a brain fog ....

take care
wobbly
dx