An addition to this thread - I'll add it to the HP as well.....
It's not in our head .... we really are affected cognitively by the heat. Neurology Now, April/May 2011 has this brief paragraph reporting from the American Academy of Neurology meeting from April:
"Warm weather is known to worsen symtoms in people with multiple sclerosis (MS). A new study looked specifically at its effect on thinking. The research team did cognitive testing on a small number of people with MS and those without the disease. Those with MS scored 70 percent better on cooler days than on warmer days. This difference was not see on people without MS. "
That is a huge number - 70% improvement in thinking when we are cool is very significant.
A hydration tip - look for coconut WATER not coconut milk. It is in the news these days to be a great source of electrolytes and potassium and excellent for hydration.
It's a natural alternative to gatorade or those other drinks.
In the islands it is also a well known cure for hangovers, not that anyone here would need that use. LOL
You can get it at Trader Joe's for sure and probably health food stores and the big grocery stores.
Dennis, you asked where to get those small gel packs - here are a couple suggestions.
At our local Meijers store (combined grocery/hard goods super store) they have small lunch box containers for kids to carry things in annd keep them cool. These are like tupperware or rubbermaid containers. They make ones that come with the small freezer pack in them and cost around $5. You would get the gel pack and the container!
I was at CVS (a type of chain drugstore) yesterday and checked their ice and hot packs. They have a variety of reusable cold packs in all sorts of sizes. They are in the $5-10.00 range.
I especially like the brand called PEAS. They are modeled after that tip that all moms know that a bag of frozen peas can be used as an ice pack and it is flexible and molds around the area that needs ice. They have small PEAS for children and they are colorful and available in fun shapes like a starfish. They also have medium and large size PEAS.
I hope these shopping tips help.
L
Lulu, thanks a million for the tips. I didn't know about the ice water tip for the hands and feet before going out. I'm going to try it!
I too have trouble sweating. When I start getting red as a beet, I have crossed over to a danger zone! It is hours before I can get my body temperature back to a normal temperature--even with AC and cold drinks. I've gotten really, really sick in the heat.
Also, I have to be very careful out in the heat when walking around or going up stairs or inclines. I love flip flops in the summer, but I find I don't raise my feet high enough without catching a crack and stumbling. I stumble way more in the summer because I don't have the strength to lift my foot up high enough. I can't tell you how many accidents I've had stumbling over my own feet--nearlly all in the summer!
Thanks again, Lulu. I hope you're having a wonderful summer!
Deb
Thanks for really helpful and interesting post. You said that it took you hours to write and I can understand why and this is just another example of your dedication and giving out to all of us on the forum. I just want to say an enormous thank you for this and all that you do.
love and hugs
Sarah x
Thanks for all of the suggestions Lulu. When I went to my 2nd opinion appt. about MS, I asked the dr., "Can you at least tell me how to take care of my symptoms? For instance, how can I not get so hot"? His only response was, "Well I know some of my MS patients use a cooling vest. You can google it."
I wish I could have paid you instead of him!!!! You gave MUCH better advice!
I was just out in the yard watering tomatoes and roses - stupid to do at mid day when the temps are in the 90's. I did preshower in cool water, wore light clothes and my neck wrap, but could only make 50 minutes before I retreated to the A/C. We have to be smarter than I just was when it comes to the heat. :-)
Very timely and very helpful. Thans for taking the time to put this together.
A friend of mine told me about a clip on battery-operated fan that is only $15. It's nice to have friends who want to try to help with heat issues.
Thanks again Lu.
Julie
I have several heat related problems.
1. In my area our temperatures are staying at or near the 105 degree range, and that's in Kansas.
2. Even if it's hot, I'm freezing, my room temperature can be 84 degrees, but I still sleep with a cover sheet and two blankets folded in half, making 4 covers over me, and I'm still cold.
3. I can see by the postings that others have trouble sweating too.
bump because really hot weather is in the forecast in the coming week.
Ess, I don't sweat anywhere visible. I do sweat under my breasts even with a bra on, and that is it.
I've not thought about it but will consider MSers as an option.
Actually sweating is VERY easy for me, too easy. I don't think it's abnormal, though. What is abnormal is how hot I get when other people are comfortable. Sometimes it's like one long hot flash, and I'm way beyond that point. In fact, never had that problem.
I've read that some PwMS cannot sweat, or only sweat on one side of their bodies.That is not a good thing. So I guess I'm lucky to be able to get it out since my body temp is out of whack.
As for the 'PwMs' usage, I've seen it a lot on the web. I prefer MSers, just easier. I'm not big on political correctness in usage, such as making sure the person comes before the disability. It's okay to do it, just for me not okay to have to do it. Sounds like something dreamed up by some Sociology prof somewhere, then people fall lockstep into it. Well, I should say 'Don't get me started!' except I've already started, haven't I? :-)
ess (Not a PC person)
I wish I could claim authorship of PwMS as my own - it is widely used in MS communities. I really dislike saying MS patient because it makes it sound like that is al there is to this person. I hope that makes sense ....
I was also surprised to learn that sweating isn't as easy for PwMS.
Thank you so much for compiling all of this information.
I never knew that People with MS (kudos to you for being politically correct - I learned in one of my college courses that you should always try to put people first, before the disability - ie "a person who is blind," rather than saying "a blind person") have trouble regulating their body temperature and the sweat glands don’t work like they were intended.
I'll have to keep all of this in mind for sure!
Thanks!
Kelly
The tip that works bigtime for me is the icy snack/drink, like italian ice, etc. Something that lasts awhile, unlike ice cream that melts too quick, and you don't get cooled down, just a belly ache.
I find if you are going to brave the heat, slowly build up some tolerance 1st. Don't just go out in it if you are not usually in it. That's a general rule for anyone, but for me, I can tolerate it more if I've been in it,then get into some shade, then go back in it, etc. And, then know when to get out and stay out until another day.
Don't be afraid to sweat a little if know your know your limits.
-shell
I would love to hear from some of you who might be trying these tips and let me know if they have helped.
Keep in mind the only way we can truly beat the heat is becoming a recluse and staying indoors in air conditioning. That just is not a good option for a variety of reasons. But these tips should at least allow us to venture out for short stretches and function better.
I can HP this, Mary, and then you can edit the document there. That gives you lots of time to think through your additions - I look forward to hearing them.
For sure Lu!! This flows as smooth and natural as a cool spring fed stream. I know it required a huge effort on your part to create this resource just so we can come around periodically for a quick dip into info we need. Thank you, thank you, thank you.
Yes, HP it
but could you drag your feet a little?
I have a few small additions you can edit (but I'm behind the clock yet again).
Besides, we can keep bringing it to the top here for a while, right?
Mary
Well done, Lu!
HP it baby!
Great info Lu, thank you so much!!! This will be a wonderful Health Page!!
It was 110 here yesterday with the heat index, and I'm melting!!! I can't believe it's only July with August still left to survive.
I will follow some of your tips and hope I can manage to cool down some. It's hard to do at work, and sometimes I can feel myself starting to "short" out" from being overheated.
Thanks again, Lu!!!
Sorry Lulu, i'd written my tips but cut and pasted over the top of my note to you. LOL posted before i noticed, whooops heres the bit i missed...
Well done Lulu, once again you've turned your notes into a really helpful informative read, so is it going to be a health page? (hint hint) I dont know if you realise how much we get out of and appreciate all the time and effort you put into doing this for us. So from me to you THANK YOU!
Dennis, I just saw them yesterday in OFFICE DEPOT with all their school supplies. I'm thinking they were either one or two dollars. I had not seen these small ones before. They were about the size of an index card and not very thick. I'm thinking I will go buy some tomorrow.
One part I left out of the write up was the different types of coolants available. There are phase change gel packs that change into a cooling pack at about 57 degrees F -they are quicker to freeze but don't stay frozen as long. Their temp is much more comfortable on our skin and you don't risk damage from direct contact on your skin.
Then there are gel ice packs that freeze at 32 degrees F - they take longer to freeze and last longer before thawing.
There are also other types of gel packs - google gel pack or phase change gel pack and be amazed at the differences. I was.
Yes, never seen the small gel packs, on a really hot day they might be useful in a bra. Seriously!
Lulu,
where do you find those gel pack for kids lunches? I never seen anything but the larger one in stores
Dennis
Thanks for the kind words because I did put some serious effort into pulling this together. This was the compilation of three or four different talks. There was a ton of information to share, I was just looking for the solid block of uninterupted time to put it all together in some format that might make sense.
In addition to DV's tip about getting A.C as a medical expense, be sure to check with your local utility company if there is a subsidy for the electric cost to run it, since it is a medical necessity. I believe California offers this but don't know about other states.
-L