Numbness

[BigRed9568]

I was diagnosed with MS at the age of 27 due to a number of seizures I just started spontaneously having. I am now 32 and so far that was my only symptom. They had me on so many different seizure meds and anxiety meds in case of multiple attacks. I decided to cut out wheat and gluten, and I'm not kidding when I say, my seizures stopped INSTANTLY, I even stopped taking my meds. Not one in over a year. With that being said, I'm now noticing new things, my right thumb has been numb for over a week. My big toe gets the weirdest pains, feels like it might fall off. All of a sudden out of no where, I'm dead tired, could be in the middle of a productive day and I cant keep my eyes open but can rarely fall asleep at night. Sometimes my eye hurts, yes my eye! My question I guess, I called my neurologist because I am becoming concerned , however he is booked until after the New Year. His assistant told me, "just go check yourself in to the ER".. is this really my only solution until the New Years?

[HVAC]

Do you live in a place with too few MS Specialists? If that is the case I can see why he can't see you. The ER will not be much help, they usually refer you to a Neurologist or tell you to see your own. Do you have a good Primary Care? Mine treats symptoms when the specialists are too busy.


Alex

[supermum_ms]

Hi and welcome to our little MS community,

Firstly let me just say..............OMG, do you need a better neurologist! I can see you in 2-3 months for a person dx with MS, is just not good enough! Most relapses are over in that time frame, so if you are in one it will be way too late for IVSM to shorten the attack and on top of that you have a history of seizures, sorry but your neurologist is important and i would be replacing him just for his lack of availability.

Please consider finding an MS neuro, who will give you his/her time when you actually need it and not when it fits his schedule, because everyone will tell you, that MS simply does not care what anyone's schedule is, it never cooperates or plays nice with others and you basically need someone who can fit in with your MS. Think about it!

If your dx and stopped taking your meds, does that mean your not taking any disease modifying drugs too?

The rule of thumb for if your having a relapse, is that any return of sx's, worsening of sx's and or experiencing something new, for no less than 24/48 hours can be indicating your relapsing and you are recommended to see a (preferably your) neurologist. I would also recommend you see a neurologist to discuss your reasons for not taking the seizure meds, and what that might mean long term and if you have only been treating the seizures and not the disease, to also discuss your DMD options.

I do not know the rules in your country, so i'm sorry I can't help you with how to find an alternative MS neuro, apart from advising you to contact your local MS society and asking them for some recommendations.

Please keep us informed of how you get on :o)

Cheers.............JJ    

[karryon55]

Hi there & welcome, I am a bit shocked by your Neuro not helping but telling you to go to ER.....hmmmmm. Have you told him about the eye pain as well because it could be Optic Neuritis...he needs to check that out or refer you straight to an Opthamologist.

Is he a MS Specialist? I know that many Neuro's don't treat sensory symptoms with something like IV Sulomedrol. I have only recently been dx'd with MS so hopefully someone will chime in with some advice for you.

The Meds you were on were they DMD for the MS or anti seizure medications?

Take Care,

Karry.

[MommyofNatTyZach]

From what I understand MS symptoms come and go. Maybe that is what has happened... I think if they couldn't get me in, I would go to ER or start my meds again.. Sorry, I am new to this!