hi deb,
sorry you have this, i is hard daily dealing with it.
itt would seeem you should have a VNG
i do know some have a hard time, buti my experince with VNG that was very easdy Please do not have your fears get in the way of test that may help ytou
it can be associated with many neuroilogical illness and ms be just one of them on thel ong list.
i hope you get refered quickly, amo
AMO is right. The VNG is the test for you. I don't remember any water, just warm air, and it wasn't bad. I had a very bad case of vertigo years ago, and have Benign Positional Vertigo now, my neuro says.
There are times, when I am tired, that I get the 'binocular' nystagmus when I look down to read. And he said I had a bit of nystagmus the last time I was in his office. My audiologist has observed vestibular nystagmus in her office (I wear hearing aids for sensorineural hearing loss). But I don't know enough about gaze-evoked nystagmus to tell you anything, I'm sorry.
Did a doc tell you it's what you have?
I hope you feel well, and like AMO said, that you get a speedy referral!
Zilla*