Ride it out - 6 weeks in the long term with a DMD isn't anything to worry about.
Deb, this makes so little sense. Go back to talking to the neuro and ask for a referral for observation someplace else. This can even be done in the neuro's office. Your concern about being off a dmd is understandable, since you have always been off for a couple months from what I can tell.
In the long run it probably won't make a difference but I do understand your concern.
hugs. L
Deb, many people take Tysabri who are JC+
I have been JC+ before I started Tysabri......
Being in "reboundland" myself, I understand your concern. As Lulu says, we understand. Could you call Gilyna and ask them for a list of sites in your area? I know when I had scheduling infusion center difficulties with Tysabri, I just called Biogen and my caseworker "fixed" it.
Keep us posted, we are here for ya
Hiya.
Most people are JC+, so it's not unusual that you tested with it.
I had several relapses back to back and my MS Neuro wanted to put me on tysabri. I got the impression that she thought it would have a quicker effect...
Re the Gilenya.
I agree with Lulu. I'm not sure what part of the country you are in but there are multiple locations that can do the required 6 hour monitoring. Are there any infusion therapy locations near you? When they have people on Tysabri - where are they sending them? They likely do not do the infusions in the dr's office. If you have insurance, maybe you can call them and ask them for approved locations?
Good luck on the Gilenya!
Hey Deb,
If it were me, and no other safe haven, i.e., being observed where something can be done to help you if god forbid your heart rate slowed to dangerous level, I would wait it out.
No sense in putting yourself in harms way "just" to start now. The neuros office will be ill equiped to intervene fast in an emergency situation - too dangerous period.
Sorry you have activity, and no means to stop it at this very moment. Hope the steroid infusion hold you for these weeks :)
(((((hugs)))
-shell