Hopes and dreads neuro

[twist330]

Ok Wednesday I go back to see my neuro. It is over 6 months since I saw him last, at that point, his view ,was my condition was functional i.e. caused by stress, depression, anxiety, you get the idea. Well since then I have been seen by the neuro-shrink and she say I am not mad! and I know, that is what she has written to him. I have also seen the neuro-rehabilitation team who felt concerned about what was happening to me with no Dx and are arranging physio.

I have also seen regularly a general medical consult who is fantastic, he is treating the symptoms he has me on medication which helps a little with the nerve pain, he has arranged the botoxilin injections in my eye. I see him ever 6 to 8 weeks, I just feel this guy is on my side.

When I see the neuro I hope that he will send me for another MRI it been nearly a year since the last one. I hope that I am brave enough to demand I have it at a hospital that has a 3T machine (there's one about 150 mile away that can do it privatley, we have insurance).

What I dread is if he feels that he's done all he can and others are looking after me so he just signs me off!

So there we have it, I need to get that off my chest.

[twist330]

Thanks everyone.

I alway find at these appointments they never end up going down the path you expect them to, and then I get completely thrown off track! I can't think quick enough to pick up the thread, but can guarantee with in 15 mins of leaving the office I have a hole host of questions I should have asked.

I have had a second opinion, back in April 2010 which my neuro arranged, at the time he seemed very plesant, but when I started to think back on the conversation and examination he was an absolute twit. He hadn't looked at the MRI's or my notes and suggested it was hard to go back to work after being off sick! I did mange to point out that as I was self employed I did not have the luxury of going of sick in the first place! ( we did this privatley as it would be much quicker on than NHS and he didn't even have good maners to send a summary letter.)

My GP hinted that he thought I should be having a another MRI. So if all else fails on wednesday I shall go and see my GP.

Thanks again guy I learnt so much from this forum and the support from you all has really helped me.

[wiggles94]

I agree with all that the others have said.  I assume you're not on a disease modifying treatment since you haven't been dx yet.  This is the big reason that  I would push your neuro.  If you start treatment, it can slow the disease progression.

Just make sure you got to your appt armed with all the notes from other docs, test results, and your questions written down.  I know I get easily confused in my docs office, and if I don't have things written down, I forget what I wanted to discuss with him.

Do whatever you have to do to get the treatment you deserve.  You only have one body - and you need to be your own best advocate. I think of it this way - if this were my child, I would never give up pushing for what I felt he needed.  Shouldn't we do the same for ourselves?   Why is is that we are SO afraid to question when it comes to docs?  Don't leave  his office until all your questions are answered, and if he writes you off, then see another neuro.  

I would think that he would order another MRI with all that has been going on with you.  It's great that you have some good docs who are helping you. Good luck and feel well!
Carol

[MCBCON]

I have an appoint coming ups with my MS doctor soon.  I am dreading it and I already have be diagnosed with MS by an MS specialist that ran the clinic before my neurologist/MS specialist took it over.

What I am saying is that going to see a neurologist never completely stops being something one dreads.

[HVAC]

I know things work differently in the UK. Here Neurologists like to see yo every six months over a period of years and do tests. It is good the other Doctor weighed in and it is good you are getting your symptoms treated.

I thought because it was taking so long I was being dismissed and I was not. Neurologists truly can not see into the brain and spinal chord. The MRIs give just a glimpse. I also thought magically when I was diagnosed my care would change and it really did not. My GP still treats my symptoms and I see my Neurologist or his assistant for 15 minutes twice a year.

My Neurologist said this is not MS, this is not MS, this is not MS, this definitely is MS.

I wish you the best of luck. I hope you get what you want out of this Doctor many of us have known your frustration.

Alex

[Sumanadevii]

Then there is that thing called "second opinion" and I wouldn't hesitate to get it.